Author Topic: Unicorns For Addy  (Read 83177 times)

Offline Laura H

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Re: Unicorns For Addy
« Reply #525 on: February 25, 2015, 08:43:43 AM »
I'm hopeful for a good outcome, there's always a reason to hope. But I wouldn't know how to boost their spirits. They're beat down right now and scared to boot.

“There is no greater agony than bearing an untold story inside you.” ― Maya Angelou

“Don't be like the rest of them, darling.” ― Eudora Welty

Offline Annmarie

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Re: Unicorns For Addy
« Reply #526 on: February 25, 2015, 09:15:30 AM »
Terrible.

 :'(
Work hard. Believe. Take a chance.

Offline fire-fly

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Re: Unicorns For Addy
« Reply #527 on: February 27, 2015, 06:56:51 PM »
Rachael post since seeing the transplant team yesterday:

Quote
Sorry for the delayed response for yesterday's Transplant Team Meeting...
Over all the information we received is no worse than on Wednesday but its no better...
Basically a Marrow or Cord Blood transplant is our only option. ... if we don't do it we're looking at as little as 6mths with her...
There is a 20% chance that she may not make it through the process, which is quite in your face high but that is the worldwide %...
Unfortunately she has a 50% chance of relapse of the new leukemia and 40% chance of Tcell relapse, post transplant ... but we will deal with those if they happen...
She is on the urgent transplant list because there is a huge risk of her relapsing Tcell because she's unable to finish her chemo regime for that... either way she is fighting 2 cancers. .. the wait will be somewhere between 4-8 weeks with cord blood being the quickest alternative. ..
She will definitely be totally infertile. ... and after much discussion between Dad and I (mum) we have decided not to keep an ovary... the risk of that procedure for her is too high and the fact that her ovary more than likely still carries Tcell in it, we're definitely not going to give it back to her....
Information overload i know but there is so much more than this that i am still trying to dicipher ...
Thankyou all for sticking with us through our journey so far... and we will continue to need your support for months to come.. x

The one big bonus Addy has is her innocence and the fact fighting this animal is really all she has known.
I'm A Binge Thinker: Do It A Lot Somedays, Then Not Much At All.

Don't take life too seriously, none of us get out of it alive. >:D


Offline Gyppo

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Re: Unicorns For Addy
« Reply #528 on: February 27, 2015, 07:11:13 PM »
Poor old Odin must feel as if he's on speed-dial right now.

Gyppo
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Offline Laura H

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Re: Unicorns For Addy
« Reply #529 on: February 27, 2015, 08:32:16 PM »
I hate when they give time frames and percentages. I really hate this whole situation  :'(
“There is no greater agony than bearing an untold story inside you.” ― Maya Angelou

“Don't be like the rest of them, darling.” ― Eudora Welty

Offline fire-fly

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Re: Unicorns For Addy
« Reply #530 on: February 27, 2015, 08:39:29 PM »
I feel the same.

Keep dialing Gyp  :-*
I'm A Binge Thinker: Do It A Lot Somedays, Then Not Much At All.

Don't take life too seriously, none of us get out of it alive. >:D


Offline ma100

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Re: Unicorns For Addy
« Reply #531 on: February 28, 2015, 01:38:05 AM »
That beautiful little girl is the strongest, and bravest person I know. She really deserves a break. :'( :'( :-*

Offline fire-fly

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Re: Unicorns For Addy
« Reply #532 on: February 28, 2015, 05:36:15 AM »
Yep that she does mate. If you could see her hop and skip, she is a delight
I'm A Binge Thinker: Do It A Lot Somedays, Then Not Much At All.

Don't take life too seriously, none of us get out of it alive. >:D


Offline fire-fly

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Re: Unicorns For Addy
« Reply #533 on: March 05, 2015, 05:37:06 AM »
Another Addy adventure:

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Miss Addy had some skin biopsies done today for genetic testing. .. you wouldn't think little miss has 2 wounds and 4 stitches on that little bum... not with that smile anyway wink emoticon
She's only just started complaining now but i think its because its bedtime lol...
And she is super excited because its her big 5th birthday tomorrow. ... oh wow... the baby in the family is 5!!
naturally we're trying to make it as special as possible. ...
I will be sure to post some birthday pics xo

I'm A Binge Thinker: Do It A Lot Somedays, Then Not Much At All.

Don't take life too seriously, none of us get out of it alive. >:D


Offline Dawn

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Re: Unicorns For Addy
« Reply #534 on: March 05, 2015, 11:55:44 AM »
Oh gosh, look at that smile. She is such a brave warrior. Little tike is like Archie with bruised knees. Can't wait to see the birthday pictures.
Time to take it serious and get the job done

Offline Gyppo

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Re: Unicorns For Addy
« Reply #535 on: March 05, 2015, 02:54:55 PM »
Does her condition leave here more susceptible to bruising, or is she just one of those kids who doesn't give a damn and barges into things anyway?

Either way, that's a glorious smile.
My website is currently having a holiday, but will return like the $6,000,000 man.  Bigger, stronger, etc.

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Offline Don

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Re: Unicorns For Addy
« Reply #536 on: March 05, 2015, 04:09:55 PM »
If you could bottle that smile, you could make a fortune.

It's the kind of smile that makes Unicorns work overtime. :)
I have a motto: when in doubt, go for the cheap laugh.

Offline fire-fly

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Re: Unicorns For Addy
« Reply #537 on: March 06, 2015, 01:36:32 AM »
 :D :D

It sure is Don. Its her birthday today and someone baked her a Frozen cake, she will be stoked, its amazing. Owlbaby will be green with envy  ;D

I'm A Binge Thinker: Do It A Lot Somedays, Then Not Much At All.

Don't take life too seriously, none of us get out of it alive. >:D


Offline Annmarie

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Re: Unicorns For Addy
« Reply #538 on: March 06, 2015, 02:25:07 AM »
So Frozen has little girls obsessed down there too, eh?

A beautiful cake! My girl who just turned five is going to see this and ask why she didn't get it last month on her birthday.

Addy is a cutie, and I hope she had a fantastic birthday. Not even hospital can spoil that.  :D
Work hard. Believe. Take a chance.

Offline Skylan

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Re: Unicorns For Addy
« Reply #539 on: March 06, 2015, 02:36:14 AM »
.