Sorry for the delayed response for yesterday's Transplant Team Meeting...Over all the information we received is no worse than on Wednesday but its no better...Basically a Marrow or Cord Blood transplant is our only option. ... if we don't do it we're looking at as little as 6mths with her...There is a 20% chance that she may not make it through the process, which is quite in your face high but that is the worldwide %...Unfortunately she has a 50% chance of relapse of the new leukemia and 40% chance of Tcell relapse, post transplant ... but we will deal with those if they happen...She is on the urgent transplant list because there is a huge risk of her relapsing Tcell because she's unable to finish her chemo regime for that... either way she is fighting 2 cancers. .. the wait will be somewhere between 4-8 weeks with cord blood being the quickest alternative. ..She will definitely be totally infertile. ... and after much discussion between Dad and I (mum) we have decided not to keep an ovary... the risk of that procedure for her is too high and the fact that her ovary more than likely still carries Tcell in it, we're definitely not going to give it back to her....Information overload i know but there is so much more than this that i am still trying to dicipher ...Thankyou all for sticking with us through our journey so far... and we will continue to need your support for months to come.. x
Miss Addy had some skin biopsies done today for genetic testing. .. you wouldn't think little miss has 2 wounds and 4 stitches on that little bum... not with that smile anyway wink emoticonShe's only just started complaining now but i think its because its bedtime lol...And she is super excited because its her big 5th birthday tomorrow. ... oh wow... the baby in the family is 5!!naturally we're trying to make it as special as possible. ...I will be sure to post some birthday pics xo