My Writers Circle

The Coffee Shop => The Coffee Shop => Topic started by: fire-fly on July 27, 2013, 02:17:07 AM

Title: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 02:17:07 AM
Hi MWCians,

This week has been a very emotional week in Downtown Oz.

A member of our family has been diagnosed with t-cell lymphoma which is a type of cancer usually found in adults over 50.

Our family member is 3.5 years old and she has the battle ahead of her. This time last week she was jumping on a trampoline with her siblings, today she has been bought back from receiving her angel wings more then once.

Her extended family and friends have started a facebook page for her and I am inviting anyone here who may be on facebook to like her page, Unicorns For Addy.

Since the page has gone up, a lot of support has been shown on there and it has filled her parents hearts with a lot of joy in amongst this sadness.

Yesterday they were told the chemo would stop because she was just too weak and they braced for the worst news but today her heart is pumping as it should and her right lung has started to inflate.

You see, Addy has a tumor in her chest that is so big it can't be removed but it has squashed her right lung flat and it no longer functions and there was so much fluid her heart had no room to pump. She is in a coma but that will change by Monday we hope.



(http://i266.photobucket.com/albums/ii259/lindayaxley/unicorn.gif) (http://media.photobucket.com/user/lindayaxley/media/unicorn.gif.html)
Title: Re: Unicorns For Addy
Post by: Joe Mynhardt on July 27, 2013, 02:58:36 AM
Liked.  :)

Best wishes...
Title: Re: Unicorns For Addy
Post by: Skip Slocum on July 27, 2013, 03:10:21 AM
I don't have FaceBook but I know how to pray.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 03:34:43 AM
 :-* :-* :-*

Thank you both very much.

I will try to get a photo of her up.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 03:40:39 AM
Addy when first admitted to hospital

(http://i470.photobucket.com/albums/rr61/firefly254/Addys_zps89587b65.jpg) (http://s470.photobucket.com/user/firefly254/media/Addys_zps89587b65.jpg.html)

The three sisters, Bailey, Ellie (Snot Monster) Addy

(http://i470.photobucket.com/albums/rr61/firefly254/Addyss_zpscb0ee38d.jpg) (http://s470.photobucket.com/user/firefly254/media/Addyss_zpscb0ee38d.jpg.html)

Title: Re: Unicorns For Addy
Post by: JewelAS53 on July 27, 2013, 03:47:26 AM
Liked. Sounds like Addy is having an encouraging day. Strength to you all. xxx
Title: Re: Unicorns For Addy
Post by: bri h on July 27, 2013, 06:07:10 AM
Aww she's so cute. I'll add you when I go to FB. Have you a link I can click ff? Loved your perfec' descript, 'snot-monster.' Sums up early childhood for me .  ;D
I saw you were missin this week and just assumed you were fire-fightin and stuff. Reality has such an un-subtle way of kicking us in the teeth, don't it? Thoughts are with Addy today. B xxxx
Title: Re: Unicorns For Addy
Post by: Gyppo on July 27, 2013, 07:19:11 AM
My pagan prayers are added to all the rest.  Children should not have to face these challenges.

Strength to all.

Gyppo
Title: Re: Unicorns For Addy
Post by: Vienna on July 27, 2013, 07:50:25 AM
and my prayers are added too. Very best wishes to her and the family. Wish you all strength to get through these difficult times.

and a like on FB
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 08:08:28 AM
 :-* :-* :-*

Thanks to you all.

Bri its been a hell week I have to say. We also lost a Firefighter friend to a motor bike accident the same day we found out how sick Addy was.

Just back now from a dinner with his family, its just been rough so I do thank you all and appreciate all your comments.  :)
Title: Re: Unicorns For Addy
Post by: DistantSun on July 27, 2013, 08:20:39 AM
We have a neighbour who just turned 2, who is also a survivor  :-\ Watching kids struggle through these things is so hard. Strength, love and hope to all of you - stay strong Addy!

Here's the FB page link for anyone who's interested: https://www.facebook.com/unicornsforaddyclements?fref=ts
Title: Re: Unicorns For Addy
Post by: intercat on July 27, 2013, 08:24:21 AM
Liked.  Best wishes to her and you and family.
Title: Re: Unicorns For Addy
Post by: Laura H on July 27, 2013, 08:28:54 AM
Liked.

She's so precious.  I hate that you are all going through this  :'(
Title: Re: Unicorns For Addy
Post by: Don on July 27, 2013, 08:31:29 AM
No FB but Addy and her extended family will stay in our thoughts and prayers.
Title: Re: Unicorns For Addy
Post by: bri h on July 27, 2013, 08:34:07 AM
Liked. Did and done. xbx
Title: Re: Unicorns For Addy
Post by: Pale Writer on July 27, 2013, 08:35:46 AM
Though I do not have a FaceBook account, if I had, a herd of unicorns would be on their way. My most sincere wishes to all involved. Children are so full of light, may hers shine strong.

Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 08:47:45 AM
 :-* :-* :-*

Thanks Sunny, everyone.
Title: Re: Unicorns For Addy
Post by: heidi52 on July 27, 2013, 12:05:28 PM
The poor little angel. I hope she is doing better today. My thoughts are with you and your family FF.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 12:09:10 PM
thanks Heidi she is the nicest baby  ;D
Title: Re: Unicorns For Addy
Post by: heidi52 on July 27, 2013, 12:10:43 PM
She looks like a sweetie. So unfair.  :'(
Title: Re: Unicorns For Addy
Post by: bri h on July 27, 2013, 12:13:03 PM
It breaks my heart when I see kids suffering. They shouldn't have to go through anything like this. Am feelin it today. xbx
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on July 27, 2013, 01:32:16 PM
I can usually find plenty of words when talking or writing, usually too many if truth be told. But when it come to a child in serious condition, my words seem so useless.

Please know that Addy and the entire family are in my heart and prayers.

 
Title: Re: Unicorns For Addy
Post by: sugy on July 27, 2013, 01:49:47 PM
Addy shouldn't be going through this, nor her parents and relatives. It is so hard for everyone.

No FB, but I wish and pray that Addy and all involved have enough strength to pull through this.

Get well soon Addy.

Love and hugs to Addy from half a World away,

Sugy.
Title: Re: Unicorns For Addy
Post by: Spell Chick on July 27, 2013, 05:50:06 PM
May Addy improve steadily and may all those taking care of her stay strong and help her recover.

I wish I was better at praying, but such as they are, they are all yours.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 06:19:59 PM
 :D :D :D

She must be feeling all these beautiful thoughts and words, thanks you bunch  :-* :-*
Title: Re: Unicorns For Addy
Post by: 2par on July 27, 2013, 07:45:24 PM
A child is so vulnerable, so precious. My prayers have gone up. Her condition is on His shoulders. I hope for strength for the whole family.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 08:46:41 PM
Thanks 2par  :-*

Just heard from her mum and she said they may be waking her up today, she has improved again overnight  :D :D

Its all helping without a doubt, thanks everyone.  :-* :-*
Title: Re: Unicorns For Addy
Post by: bri h on July 27, 2013, 09:16:49 PM
As I get ready to go up to bed, I'm feeling happy at the news. So thanks and(not said enough) Thank you Lord. xBx
Title: Re: Unicorns For Addy
Post by: wanderer on July 27, 2013, 09:22:14 PM
So sad to hear about her, but sometimes miracles do happen and we wish for the best, FF. Sometimes life seems so unfair.  >:(
Title: Re: Unicorns For Addy
Post by: fire-fly on July 27, 2013, 11:13:53 PM
I agree Wanderer, shouldn't be unfair for kids should it. Life is hard enough as we mature without it being so in the years when it should be all unicorns and fairies.
Title: Re: Unicorns For Addy
Post by: Big T on July 28, 2013, 01:26:22 AM
Hi fly...
Been there, liked, but not enough.
Need more info... then help in a more positive way.
Best to all especially the wee one.
T
Title: Re: Unicorns For Addy
Post by: ma100 on July 28, 2013, 02:35:23 AM
Haven't been around mate, but I'm praying for Addy every day.  :-* :-* :-* I am sending positive thoughts and wishes to this beautiful little girl.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 03:09:46 AM
Hi fly...
Been there, liked, but not enough.
Need more info... then help in a more positive way.
Best to all especially the wee one.
T

Thanks T, I seen your post on there mate, they will find out more tomorrow for you THANK YOU.  :-*

Me neither Ma but she is picking up, they hope to wake her today, its so exciting.  :D Thanks Ma  :-*
Title: Re: Unicorns For Addy
Post by: intercat on July 28, 2013, 03:14:37 AM
Keep us posted!  I don't even like kids, but it's still so heartbreaking when a child has to go through something like that...
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 03:32:40 AM
We think alike Intercat  :D

Just talked to her mum and they have taken her drainage tube out so that's super news but won't wake her today.
Title: Re: Unicorns For Addy
Post by: Spell Chick on July 28, 2013, 07:24:02 AM
We do some of our best healing and repairing when we are asleep and not concerned with all the other cares of life. I don't know if that tidbit helps or not, but it makes sense. Love to all, SC, RN
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 08:13:41 AM
Yeah that must be part of the reason they keep you under do you think mate?

She wasn't eating when she was awake either.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on July 28, 2013, 02:03:21 PM
Whee haw.  ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 05:40:55 PM
 :D :D

I know Skip, I have been so excited.  ;D ;D
Title: Re: Unicorns For Addy
Post by: thatollie on July 28, 2013, 06:01:08 PM
best wishes from over here.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 06:36:09 PM
Thanks Ollie  :-* :-*
Title: Re: Unicorns For Addy
Post by: DistantSun on July 28, 2013, 07:55:21 PM
How are her siblings doing with this huge shift in their lives? It's got to be really hard on them too.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 28, 2013, 08:10:42 PM
The two little girls are blissfully unaware just how ill she is. Its all fun buying Addy books and visiting etc. The older boys are devastated as they do understand.

They hadn't seen their mum all week either so they were fretting but they were all going to see her yesterday. Only two in the ward at a time so that's another hurdle, trying to amuse kids in a bland hospital waiting room.  ???
Title: Re: Unicorns For Addy
Post by: fire-fly on July 30, 2013, 09:22:04 PM
Look who we have back!!   ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D

(http://i470.photobucket.com/albums/rr61/firefly254/Addyy_zps254108f3.jpg) (http://s470.photobucket.com/user/firefly254/media/Addyy_zps254108f3.jpg.html)

Still a long long road ahead yet but she is still with us.

An MRI today to see what the monster inside her is doing.

The tumor can never be removed, they have to make it disappear. Its in a bad position in relation to her heart from what I understand.

Her mum says she is feisty today and poked her tongue out at her dad, a bit of a game they play.

The tube is still in for the ventilator but they are hoping that will come out today too.

(http://i470.photobucket.com/albums/rr61/firefly254/Animated%20Giffs/3.gif) (http://s470.photobucket.com/user/firefly254/media/Animated%20Giffs/3.gif.html)

Thanks everyone for spurring her on, things look so much brighter this week.  :D :D

(http://i470.photobucket.com/albums/rr61/firefly254/Animated%20Giffs/kisses_muah_red_glitter.gif) (http://s470.photobucket.com/user/firefly254/media/Animated%20Giffs/kisses_muah_red_glitter.gif.html)
Title: Re: Unicorns For Addy
Post by: 510bhan on July 30, 2013, 09:26:45 PM
Fabulous news, Fly. Hope she continues her recovery and is annoying you soon. ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on July 30, 2013, 10:36:25 PM
 ;D ;D

We Don't often wish for that sorta thing do we 510. Thanks mate  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on July 30, 2013, 11:20:13 PM
Tubes now out, she is on her own. Mum says she has a sore throat and not talking too good but that will improve.  :D
Title: Re: Unicorns For Addy
Post by: sugy on July 31, 2013, 02:10:12 AM
 ;D ;D ;D ;D ;D

Wonderful piece of news FF!
Title: Re: Unicorns For Addy
Post by: fire-fly on July 31, 2013, 03:20:35 AM
 ;D ;D

It certainly is Sugy.

Here she is at the end of the day, tubes out, just these little nose ones.

(http://i470.photobucket.com/albums/rr61/firefly254/Animated%20Giffs/Adddy_zps5b89412b.jpg) (http://s470.photobucket.com/user/firefly254/media/Animated%20Giffs/Adddy_zps5b89412b.jpg.html)
Title: Re: Unicorns For Addy
Post by: midnight candle on July 31, 2013, 03:27:52 AM
Fantastic news FF  8)
Title: Re: Unicorns For Addy
Post by: ma100 on July 31, 2013, 03:45:03 AM
Great news mate. :)
Title: Re: Unicorns For Addy
Post by: fire-fly on July 31, 2013, 04:01:38 AM
Been a long week that's for sure. Just so happy for them right now.
Title: Re: Unicorns For Addy
Post by: Gyppo on July 31, 2013, 05:18:50 AM
See that little gleam in the eyes?

Good news.

Gyppo
Title: Re: Unicorns For Addy
Post by: fire-fly on July 31, 2013, 06:04:27 AM
 :D :D

Yep, nice to see isn't it
Title: Re: Unicorns For Addy
Post by: Spell Chick on July 31, 2013, 06:50:22 AM
I'm so thrilled for all of you. Love and prayers work miracles.
(sorry for the mush, but sometimes I'm mushy)

 :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on July 31, 2013, 07:27:40 AM
Sometimes I don't mind.  :D

She may get home in a fortnight if she keeps travelling this well but that's when life gets hard with 5 siblings, all with child hood sniffles and germs.

She will conquer it all though I think.  :D
Title: Re: Unicorns For Addy
Post by: Skip Slocum on July 31, 2013, 11:22:30 AM
 ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on July 31, 2013, 12:07:17 PM
The staying power of the young is nothing short of miraculous. I love it.

Great news FF, Abby has been on my mind a lot. Thank you for keeping us updated.

 8)
Title: Re: Unicorns For Addy
Post by: cswillson on July 31, 2013, 12:07:43 PM
I don't have FaceBook but I know how to pray.

Good on you, brother. Facebook won't save her.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 31, 2013, 06:18:42 PM
Thanks again guys.  ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on August 01, 2013, 03:18:26 AM
What a difference a day makes!!

Addy is now back in her oncology ward and out of ICU  :D :D

(http://i470.photobucket.com/albums/rr61/firefly254/Addddy_zpsf282249b.jpg) (http://s470.photobucket.com/user/firefly254/media/Addddy_zpsf282249b.jpg.html)
Title: Re: Unicorns For Addy
Post by: Gyppo on August 01, 2013, 05:45:35 AM
Just look at that grin ;-)
Title: Re: Unicorns For Addy
Post by: Don on August 01, 2013, 06:29:58 AM
Sometimes you just gotta believe. Go, Addy!
Title: Re: Unicorns For Addy
Post by: 510bhan on August 01, 2013, 06:35:10 AM
Wow! :o
Title: Re: Unicorns For Addy
Post by: Laura H on August 01, 2013, 07:08:55 AM
She's a beauty and a fighter  :-*
Title: Re: Unicorns For Addy
Post by: DistantSun on August 01, 2013, 08:59:13 AM
Just look at that grin ;-)

That's what I was going to say :D

Fly - here's a pic Dad sent of the pillowcase Mum made:
(http://i1153.photobucket.com/albums/p506/SunnysPics/Image_zps1f99c3a7.jpg) (http://s1153.photobucket.com/user/SunnysPics/media/Image_zps1f99c3a7.jpg.html)
Title: Re: Unicorns For Addy
Post by: Spell Chick on August 01, 2013, 09:24:10 AM
What good news.
Title: Re: Unicorns For Addy
Post by: sugy on August 01, 2013, 09:47:59 AM
Such a lovely pic of hers. That smile says it all! Feel so happy for all of you.  ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: bri h on August 01, 2013, 02:41:16 PM
What a charming little lassie. Are you gonna show her the support here and on FB she got? Will she like that sort of thing? Or is she still too young? I'd like to say (as a Dad myself) I love little girls. (after raising two myself) I know how lovely they are. (I suppose little lads are as well, but I only have experience with girlies). So glad she's out of the woods. xx
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 01, 2013, 02:44:54 PM
 ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: intercat on August 01, 2013, 02:53:22 PM
So happy for you and yours!  What a gorgeous kid.
Title: Re: Unicorns For Addy
Post by: ma100 on August 01, 2013, 03:22:44 PM
She's so cute. Let the good news keep coming. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on August 01, 2013, 07:19:48 PM
 :D :D

Thanks one and all. I will give her mum a link to this page as well. I don't like to intrude too much, its all very overwhelming at the moment but it a good way.

Sunny that is beautiful, she will love love love it  :-* :-*

Now begins her long road to recovery. But at least she now has that chance to at least try.  ;)
Title: Re: Unicorns For Addy
Post by: Spell Chick on August 02, 2013, 12:26:04 PM
Go Addy!
Title: Re: Unicorns For Addy
Post by: fire-fly on August 03, 2013, 11:33:46 PM
The news yesterday for Addy was she was going home till her next chemo treatment. The family were over the moon to take her but it was short lived.

She had developed a fever so she is back in again poor little mite.  ???
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on August 04, 2013, 12:06:22 AM
Such things are hard on everyone, feels like your life is controlled by a Yo-Yo. Down one moment, the a ray of hope sends you Up, then before you know what's happening, you're sent back Down.

But when it's your child, you learn to deal with it as best you can.

Prayers and all the good wishes I have are on their way to Abby and family.
 
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 04, 2013, 12:42:38 AM
That's tough, chemo = irritation = elevated white blood count = fever  :(
Title: Re: Unicorns For Addy
Post by: fire-fly on August 04, 2013, 12:48:13 AM
Yep, exactly. Just have to cherish the good moments ay.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 05:39:03 PM
Well guys, Miss Addy is back home again until next week now I think. Fingers crossed she stays well in the mean time.

On facebook her mum said her hair is falling out and gets in her food so when they got home, they were shaving it off.

Addy is cool with that so mum put it up for her.

(http://i470.photobucket.com/albums/rr61/firefly254/Addddddy_zps62a4e020.jpg) (http://s470.photobucket.com/user/firefly254/media/Addddddy_zps62a4e020.jpg.html)

She posted this one with her big sister Bailey. My heart melted.

(http://i470.photobucket.com/albums/rr61/firefly254/Adddddddy_zps1eabe2bc.jpg) (http://s470.photobucket.com/user/firefly254/media/Adddddddy_zps1eabe2bc.jpg.html)
Title: Re: Unicorns For Addy
Post by: wanderer on August 06, 2013, 05:49:10 PM
Certainly great news and the pictures are priceless.  ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 05:54:16 PM
 :D :D

They are aren't they.

I have been a bit slack updating on here but life has been full on on this side of the computer screen.
Title: Re: Unicorns For Addy
Post by: Gyppo on August 06, 2013, 05:58:51 PM
Let's keep the prayers and powerful wishes going, folks.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 06:05:50 PM
Oh yes please, they would appreciate that so much.

Wanderer was so kind as to suggest sending Addy postcards from all around the globe.  ;D

I think it would be a super wonderful idea and if anyone would like to do that, please feel free to PM me and you could send them here to me and I will pass them on.

She is only 3 but this ride she is on goes for 2 years first up and then who knows from there. The older she gets, the more she would under stand them.  ;)
Title: Re: Unicorns For Addy
Post by: Dawn on August 06, 2013, 06:24:42 PM
Fantastic idea - lovely Bill, you can count us in hun.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 06:32:01 PM
Why did I know that Dawn.  :-* :-*
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on August 06, 2013, 07:11:27 PM
So glad to see the up date FF. Thank you.  I was thinking of her earlier and had decided to PM you, but you beat me to it.

Wonderful pictures. I love them.  :-*
Title: Re: Unicorns For Addy
Post by: DistantSun on August 06, 2013, 07:42:40 PM
Got your details already Fly, so we'll send Addy something soon :D Let me know when Mum's envelope arrives too!
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 07:44:03 PM
Such a special one with her sister. Her hair is all shaved in that shot but a bit hard to see.

Got your details already Fly, so we'll send Addy something soon :D Let me know when Mum's envelope arrives too!

Damn tootin I will Sunny, thanks mate.  :-*
Title: Re: Unicorns For Addy
Post by: intercat on August 06, 2013, 08:55:56 PM
I've actually got a few Milwaukee postcards lying around that I haven't figured what to do with; I'd love to send one her way.  I'll PM for info.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 06, 2013, 11:14:16 PM
Thanks Cat  :D
Title: Re: Unicorns For Addy
Post by: fire-fly on August 08, 2013, 01:05:39 AM
That's what I was going to say :D

Fly - here's a pic Dad sent of the pillowcase Mum made:
(http://i1153.photobucket.com/albums/p506/SunnysPics/Image_zps1f99c3a7.jpg) (http://s1153.photobucket.com/user/SunnysPics/media/Image_zps1f99c3a7.jpg.html)


 :D :D

Yay, your parcel arrived today Sunny.

I see them tomorrow so I will pass it on.

Please thank your wonderful mum for me  :-* :-* :-* :-* :-* :-* :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: Dawn on August 11, 2013, 05:04:13 PM
Awwww it's gorgeous - Wow Jeanette your mum is good.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 11, 2013, 05:08:26 PM
She is clever isn't she  :D

Rachael said Addy loves it and it was straight on her pillow on Friday. But unfortunately by Saturday she was back in hospital and missed her big sisters birthday party on Sunday  ???

Her bloods are bad and this week she has to have blood transfusion.  :'(
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 11, 2013, 05:34:21 PM
Speeded up, super-dooper-blood with muscle making munchkins makin' power for Addy only, right?
Title: Re: Unicorns For Addy
Post by: fire-fly on August 11, 2013, 05:36:06 PM
 ??? ???

I really hope so Skip. I was chatting to her aunty last night and the two year fight is followed by 10 years wait to go into remission.

But she did say Addy has a better chance than someone older so that is goodish news.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 11, 2013, 06:06:25 PM
Tell Addy, high performance racing engines need an oil change now and again to keep em in tip-top condition.   ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on August 11, 2013, 06:08:48 PM
 :D :D

She takes it all in her stride Skip, amazing little girl. Still jokes with her dad.

When they were leaving the hospital he said "Lets go find the car."

Addy said "Nah dad, remember we came on the motor bike, lets find the bike."

So the game began.... :P
Title: Re: Unicorns For Addy
Post by: Spell Chick on August 11, 2013, 06:22:41 PM
I hope her counts get back to normal soon.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 11, 2013, 07:41:32 PM
Yeah me to Patti. Shes a little fighter thank God.
Title: Re: Unicorns For Addy
Post by: DistantSun on August 11, 2013, 08:32:02 PM
Woo hoo :D Glad she liked the pillowcase!
Title: Re: Unicorns For Addy
Post by: fire-fly on August 11, 2013, 09:42:44 PM
She did very much mate. Rach was sending a photo but Addy went back into hospital.  ???
Title: Re: Unicorns For Addy
Post by: JewelAS53 on August 12, 2013, 05:16:28 AM
I don't say much, but I read it all.
Hope you all have a better week.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 12, 2013, 05:47:54 AM
Thanks Jewel.  :-*

She had the transfusion and is hoping to go home tomorrow, well her parents are hoping to take her home so fingers crossed.  ;)

Skip, you may have been spot on mate.  :D
Title: Re: Unicorns For Addy
Post by: JewelAS53 on August 12, 2013, 06:11:02 AM
Of course... by the time my day starts yours is just about done.
Title: Re: Unicorns For Addy
Post by: Dawn on August 12, 2013, 08:00:08 AM
Really hope Addy gets to go home - everything crossed hun.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 12, 2013, 05:06:01 PM
Yeah Dawn, she is on a bloody hard road for a little tacker.  ???
Title: Re: Unicorns For Addy
Post by: bri h on August 12, 2013, 05:10:06 PM
Still thinkin of her. xbx
Title: Re: Unicorns For Addy
Post by: fire-fly on August 12, 2013, 05:11:09 PM
Thanks Bri  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 08:58:25 AM
Well Miss Addy did go home but it was short lived and she was back in hospital within four hours due to an infection.

Its all par for the course according to her mum and dad, until they knock this thing and find the right meds to keep it settled.

They are in there now until next week.

But she is still with us so something, or a combo of lotsa things, is working.

Some pics of the little darling, without her locks and in a few beanies.

Her beautiful eyes have lost their spark but that will come back with a vengeance  ;)

The pink one is a cabbage doll wig beanie.  ;D ;D

(http://i470.photobucket.com/albums/rr61/firefly254/Addyys_zpsdad05101.jpg) (http://s470.photobucket.com/user/firefly254/media/Addyys_zpsdad05101.jpg.html)

(http://i470.photobucket.com/albums/rr61/firefly254/Ad_zps8d4be4c6.jpg) (http://s470.photobucket.com/user/firefly254/media/Ad_zps8d4be4c6.jpg.html)

(http://i470.photobucket.com/albums/rr61/firefly254/Add_zpsf75d2a23.jpg) (http://s470.photobucket.com/user/firefly254/media/Add_zpsf75d2a23.jpg.html)
Title: Re: Unicorns For Addy
Post by: ma100 on August 16, 2013, 09:22:45 AM
Aww bless her.  :( Still keeping everything crossed for her love. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 09:43:22 AM
Breaks my heart Ma  :'( :'(
Title: Re: Unicorns For Addy
Post by: Laura H on August 16, 2013, 09:49:45 AM
It's so hard to watch a child go through something like this  :'(
Title: Re: Unicorns For Addy
Post by: JewelAS53 on August 16, 2013, 10:06:52 AM
My heart breaks for you all. Still praying and hoping.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 16, 2013, 11:38:49 AM
Does that baby have an i-pad to watch cartoons on or a game box with crayons and dolls?

Tell her we're waving to her from Mississippi. "Addy make funny faces at all the people who come into your room."  ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 12:23:47 PM
Laura it is hard and we are not living it. Can't imagine the torture her mum and dad go through every day.  ???

Jewel, thanks, it is very beautiful to know so many strangers think of her daily  :-*

Skip, she has an iPad mate and books and crayons and so many things to try and help her stay occupied. Even telly to watch Peppa Pig and Dora. They are her faves  :D

Title: Re: Unicorns For Addy
Post by: sugy on August 16, 2013, 12:54:33 PM
I just got here after a long time and my heart breaks to know Addy has been in and out of hospital. It seems so unfair on such a small wonder! I hope and pray she gets the spark back in her eyes and a healthy life to lead.

May the parents and the close ones have more and more strength, patience and belief to pull through these tough times.

Those pictures of her in her beanies are so cute yet heart wrenching, brings tears to my eyes.


Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 12:57:41 PM
Thanks Sugy, I know exactly what you mean. She is so adorable but looks so I'll all in one  ???
Title: Re: Unicorns For Addy
Post by: sugy on August 16, 2013, 01:04:27 PM
Yeah, I feel like looking at those pictures again and again and all the time the question why pops up in my head and bothers me. :'(                 

I just can't imagine what the parents are going through.
Title: Re: Unicorns For Addy
Post by: 2par on August 16, 2013, 01:09:09 PM
Blessings to her brave little heart.
Title: Re: Unicorns For Addy
Post by: Spell Chick on August 16, 2013, 01:36:01 PM
Medical miracles happen.  :-* :-*
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 16, 2013, 01:41:32 PM
FF - When she's watching Dora the Explorer, ask her if she thinks Diego is cute. "Hola"  ;D
Title: Re: Unicorns For Addy
Post by: bri h on August 16, 2013, 02:41:56 PM
Could you not create a secure email address for her that we can send pics and poems and funnies to? Or even say 'hi?'  I'd love to send her pics of Barney and Maisie, (all kids love happy dogs I think?) B
Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 09:48:03 PM
Bri I will ask them but being in hospital all the time, I don't know about internet. I know she has an ipad but not its capabilities mate. Nice thought though and I will find out.  :-*

Skip, she would not think he is cute, hes a boy.  :o :o :D :D

Patti, I think she has had a few of those miracles since being hospitalized. She really should not have survived according to them.

2par, thanks. She is brave, they reckon out of all the kids she is the toughest.  :)
Title: Re: Unicorns For Addy
Post by: DistantSun on August 16, 2013, 11:20:18 PM
Oh, my kids loved Peppa :D It looks like there is someone close by her who crochets... so hopefully that unicorn pattern I posted on FB finds its way to someone who can make it for her.

Title: Re: Unicorns For Addy
Post by: fire-fly on August 16, 2013, 11:21:33 PM
 :D :D

I loved that Sunny.

I think someone will grab hold to it and run one up mate.

Isn't that cabbage patch beanie adorable?  ;D
Title: Re: Unicorns For Addy
Post by: DistantSun on August 16, 2013, 11:24:34 PM
It's cute, yeah :D
Title: Re: Unicorns For Addy
Post by: fire-fly on August 23, 2013, 04:38:21 AM
Another Addy update

She has been home since about Tuesday now I think, which is a record. Her appetite has returned and at all hours of the night she wants pizza, pies and sausages and she doesn't care in what order.  :P :P

She is still weak and can't walk but she stays on the lounge so the house buzzes around her.

Rachael, Addy's mum said the tumor has not responded as they had hoped so has not shrunk much. She has a CT scan on Monday to determine the dimensions of the monster to see if they will operate, which will be sometime next month if they do.  ???

A few members have sent Addy postcards to my house and I gave them to her dad today

Wanderer

Intercat

Alice, A Country Girl

Well she was tickled pink with them and her mum posted a photo on facebook, but I sneakily turned it around cause it was upside down  :D

The post was titled "Postcards and well wishes from the other side of the world."

Rach said:

Yes its absolutely amazing the support we are recieving from people... my Addy is certainly very special and not just to me.... mum

(http://i470.photobucket.com/albums/rr61/firefly254/5b50a512-7f75-40e9-bca5-9ba9daa5155b_zps58f84574.jpg) (http://s470.photobucket.com/user/firefly254/media/5b50a512-7f75-40e9-bca5-9ba9daa5155b_zps58f84574.jpg.html)

Thanks for brightening a little girls life and uplifting her family as well, you guys are the greatest.  :-* :-* :-* :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: Gyppo on August 23, 2013, 09:54:45 AM
Odin hasn't shown any signs of being disgruntled when I keep knocking on his door and asking him to help the little warrior maid.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 23, 2013, 05:27:09 PM
I thank you for your persistence there Gyp.  :-*

She is a very ill little girl and the news they received about her tumor not shrinking is the worst they could have got.  ???
Title: Re: Unicorns For Addy
Post by: ma100 on August 23, 2013, 06:24:54 PM
Quote
Her appetite has returned and at all hours of the night she wants pizza, pies and sausages and she doesn't care in what order.

Good on her. Bless her.

Not great news mate, but keep the positivity flowing. :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: Dawn on August 23, 2013, 06:33:49 PM
Keep the faith - as cheesy as that sounds - Addy is a fighter - just waiting for the wool to come it and will post with the boys cards
Title: Re: Unicorns For Addy
Post by: fire-fly on August 23, 2013, 09:29:28 PM
 :-* :-* :-*

Thanks Ma, Dawn.

She is a fighter and her dad said yesterday, a cranky one.  :D
Title: Re: Unicorns For Addy
Post by: 510bhan on August 23, 2013, 09:37:06 PM
Cranky's good if she's at home. Beats hospital. Once she's better it'll go away. ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on August 23, 2013, 10:14:37 PM
 :D :D

True 510. She is the fiesty one of all the kids they tell me. She always looks innocent when I see her.
Title: Re: Unicorns For Addy
Post by: sugy on August 26, 2013, 11:28:54 PM
Knocked on this thread to see how Addy is doing. Good to know she is back home now and doing well. Hope she has gained enough strength to walk around now. Those pizza and pies should have helped, I suppose.  :)
Title: Re: Unicorns For Addy
Post by: JewelAS53 on August 27, 2013, 04:07:40 AM
Encouraging to hear the tumour is finally shrinking. What horrific procedures the poor child has to endure.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 27, 2013, 04:23:53 AM
Yeah it sure is Jewel.

She had these before but she was out of it for a week when she was on life support.

She must scream every time they get near the hospital  ???
Title: Re: Unicorns For Addy
Post by: Skip Slocum on August 27, 2013, 01:24:49 PM
 ;D ;D
Title: Re: Unicorns For Addy
Post by: DistantSun on August 27, 2013, 08:28:14 PM
That little pouty pic of her sans beanie was both cute and sad at the same time. Must remind myself to pick up a postcard for her when we're out tomorrow!
Title: Re: Unicorns For Addy
Post by: fire-fly on August 27, 2013, 08:54:50 PM
Shes received some from Ireland this week Sunny and a Newnicorn bag.  :D
Title: Re: Unicorns For Addy
Post by: Dawn on August 28, 2013, 05:24:10 AM
Yippee the wool is here so can finish the little hat. how are things ff? I saw Rachel's little up date.
Title: Re: Unicorns For Addy
Post by: fire-fly on August 28, 2013, 06:15:31 AM
 :D :D

Nice one Dawn you clever girl.

It was nice to see her update. Will see them Friday when Ellie goes to their house.

Its Fathers Day here this Sunday  ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on September 06, 2013, 08:00:07 AM
Little Addy is back in hospital.....again. Its a never ending saga for her I'm afraid.

This message was on her facebook page earlier:

Quote
In hospital again not feeling very well today. .. big temperatures and her platelets are really low... so we are getting a platelet transfusion right now..
Had a red cell trans on tues too... and chemo was cancelled on thurs because her blood counts were just too low... so it seems to be all happening at the moment for my precious little girl.. -mum

(http://i470.photobucket.com/albums/rr61/firefly254/Adi_zpsda3e4c81.jpg) (http://s470.photobucket.com/user/firefly254/media/Adi_zpsda3e4c81.jpg.html)
Title: Re: Unicorns For Addy
Post by: heidi52 on September 06, 2013, 08:03:05 AM
Poor angel. She's gone through so much.

That's a lovely picture of her, despite how sad.
Title: Re: Unicorns For Addy
Post by: fire-fly on September 06, 2013, 08:12:37 AM
It really is beautiful isn't it.

I will copy some of her smiling tomorrow and add them, little sweetie.

Title: Re: Unicorns For Addy
Post by: ma100 on September 06, 2013, 08:53:41 AM
It is heart breaking to see such a littlun go through all this.  :-* :-* :-* She is  a beauty.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on September 06, 2013, 12:05:02 PM
Thinking happy thoughts.  ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on September 06, 2013, 01:34:31 PM
She's a little trooper, but she has no choice either
Title: Re: Unicorns For Addy
Post by: JewelAS53 on September 06, 2013, 04:44:42 PM
Who's caring for the caregiver? Mum needs a hug today I think.
Title: Re: Unicorns For Addy
Post by: Neghe on September 06, 2013, 07:35:44 PM
Does Ozland have Respite services...?  
Title: Re: Unicorns For Addy
Post by: intercat on September 06, 2013, 08:21:42 PM
Seriously, you know that's a special little girl if she makes my cold, dead, children-hating heart melt.
Title: Re: Unicorns For Addy
Post by: fire-fly on September 06, 2013, 10:27:47 PM
 :D :D

I know Cat, she really is.

Who's caring for the caregiver? Mum needs a hug today I think.

They have got a lot of amazing support and Rach's sister has the other kids a lot, some come clean for her and others are just there.

Does Ozland have Respite services...? 

Yep mate, they do and I would say they will call on that if they have the need for sure.
Title: Re: Unicorns For Addy
Post by: sugy on September 08, 2013, 11:24:08 PM
Has Addy got back now or is she still in the hospital?

My prayers are for her and family.

Who's caring for the caregiver? Mum needs a hug today I think.

I sure agree. I just can't imagine what the mother must be going through.
Title: Re: Unicorns For Addy
Post by: fire-fly on September 08, 2013, 11:50:02 PM
Still in mate.

She had a platelet transfusion on Friday. They are waiting to see if these increase to do more chemo.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on September 08, 2013, 11:53:11 PM
Giving her a few days to charge her batteries.  ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on September 09, 2013, 12:01:27 AM
Pretty much mate.

Heres some smiley Addy, this one with her monkey she put a nappy on.  :D

(http://i470.photobucket.com/albums/rr61/firefly254/Unicorny_zps810abb21.jpg) (http://s470.photobucket.com/user/firefly254/media/Unicorny_zps810abb21.jpg.html)

This doll is made by people who do dolls to look like the cancer kid  ;)

(http://i470.photobucket.com/albums/rr61/firefly254/Unicornforaddy_zps3e75a2e4.jpg) (http://s470.photobucket.com/user/firefly254/media/Unicornforaddy_zps3e75a2e4.jpg.html)

She loves this doll, that's dad with her

(http://i470.photobucket.com/albums/rr61/firefly254/UnicornsforAddy_zps9565e0c9.jpg) (http://s470.photobucket.com/user/firefly254/media/UnicornsforAddy_zps9565e0c9.jpg.html)

She finally got to dress as Minnie Mouse. This was supposed to be her fancy dress for Bailey's party but she was in hospital.

(http://i470.photobucket.com/albums/rr61/firefly254/Uni_zpscce52545.jpg) (http://s470.photobucket.com/user/firefly254/media/Uni_zpscce52545.jpg.html)

She still can't walk again yet though.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on September 09, 2013, 12:08:10 AM
Whee Haw! beautiful smile.  ;D ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on September 09, 2013, 12:11:51 AM
 :D :D

That she has mate. She is a sweet as pie most of the time.
Title: Re: Unicorns For Addy
Post by: Neghe on September 09, 2013, 12:13:53 AM

I like the monkey in nappies. :-D
Title: Re: Unicorns For Addy
Post by: fire-fly on September 09, 2013, 12:14:45 AM
 ;D ;D

Uh huh, they have to find ways to amuse her all the time. She wants to go home.  :-\
Title: Re: Unicorns For Addy
Post by: Neghe on September 09, 2013, 12:16:58 AM
Yeah.

I bet she does.

I hope she can soon.
Title: Re: Unicorns For Addy
Post by: Spell Chick on September 09, 2013, 11:45:23 AM
It is so tragic that so much is happening to such a pretty, sweet, adorable baby. I wish her and her family well.
Title: Re: Unicorns For Addy
Post by: Laura H on September 09, 2013, 12:11:56 PM
Poor baby  :'(  Poor Mama and Daddy, too.l  I can only imagine what it's like for them and for you all  :-*
Title: Re: Unicorns For Addy
Post by: JewelAS53 on September 09, 2013, 12:21:15 PM
Strength, peace and courage to the whole family, and everyone else in the outer circles too.
Title: Re: Unicorns For Addy
Post by: ma100 on September 09, 2013, 12:27:55 PM
Aww, such a terrible time for her. :'( I hope she got the minnie mouse shoes too. :-*
Title: Re: Unicorns For Addy
Post by: bri h on September 09, 2013, 03:52:42 PM
I do this with all the younger kids in the family ff. And it never fails to amuse them. It's a trick by the late Tommy Cooper (a uk magician and funny man) You get a small paper bag. Hold it open between your 'Peter-pointer (index) and Toby-tall (forefinger) but with your fingers crossed over inside the bag. Toss an imaginary ball at Addy for her to catch. Then get her to toss it back. When she does, you make a big show of going for the 'ball.' As you catch it, you flick your fingers to make the paper rustle as if something's dropped into it. With practice you can make this look so genuine. It's great to see the kids' open mouths in wonder. Try it. You can make it last and last without giving the game away.

I found this link on Yewie, that shows it a bit more. But this man is using a paper carrier bag instead of a little paper bag. Bri.

http://www.youtube.com/watch?v=NSc8grc0yxw
Title: Re: Unicorns For Addy
Post by: fire-fly on September 09, 2013, 04:06:53 PM
Thanks you guys. She is a little corker as all babies are. Since the steroids have gone she is a lot happier, they were doing her little head in.

I will play that youtube when I get home Bri, can't open it at work.  ;)
Title: Re: Unicorns For Addy
Post by: bri h on September 09, 2013, 04:14:14 PM
Ok chuck. If she can handle the stresses of laughing I'll tell you how to play the 'nick-nacky-nick-nack' game with her. B
Title: Re: Unicorns For Addy
Post by: fire-fly on September 09, 2013, 04:15:30 PM
Ok, I will work up to that one. I really don't like kids I'm afraid.  :P

Love of course, is a different thing.
Title: Re: Unicorns For Addy
Post by: bri h on September 09, 2013, 04:22:38 PM
Ok, I will work up to that one. I really don't like kids I'm afraid.  :P

Love of course, is a different thing.

Is there a comma or a period missing from your above quote ff?

I really don't like kids. I'm afraid.

heh heh. B

Title: Re: Unicorns For Addy
Post by: Neghe on September 09, 2013, 05:55:50 PM

Some feel Kids are a tad frightening.
Title: Re: Unicorns For Addy
Post by: sugy on September 09, 2013, 11:28:51 PM
FF, it feels so good to see Addy's 'smiley' pictures. Cute little Minnie Mouse!  :)

I really wish her better days ahead. Hope her platelet count shoots up enough.

Ok, I will work up to that one. I really don't like kids I'm afraid.  :P

Love of course, is a different thing.

But, kids must be fascinated by your fire-fighting abilities! By the way, what are you called by the local kids? Any idea?  ;D


Title: Re: Unicorns For Addy
Post by: intercat on September 09, 2013, 11:50:31 PM
one of my friends linked this to me via facebook earlier; I had to laugh: http://www.youtube.com/watch?v=RMQl4U6z9wE
Title: Re: Unicorns For Addy
Post by: fire-fly on September 10, 2013, 12:37:54 AM
 :D :D

Like it Cat.


But, kids must be fascinated by your fire-fighting abilities! By the way, what are you called by the local kids? Any idea?  ;D




Kids are very fascinated by a female firefight mate, they always point and stare, or maybe that's my big nose.  :P

They all call me "Fire Lady"  ;)
Title: Re: Unicorns For Addy
Post by: Neghe on September 10, 2013, 01:21:35 AM

Oh, just get some T-shirt made up saying, Hot Moma.

Title: Re: Unicorns For Addy
Post by: sugy on September 11, 2013, 11:04:50 PM

Kids are very fascinated by a female firefight mate, they always point and stare, or maybe that's my big nose.  :P

They all call me "Fire Lady"  ;)
I am sure to stare too, not at the big nose but the 'Fire Lady'! Hats off! :)
Oh, just get some T-shirt made up saying, Hot Moma.
That's a nice name too! ;D

How is li'l Addy doing? Platelets behaving?
Title: Re: Unicorns For Addy
Post by: fire-fly on September 11, 2013, 11:09:44 PM
Shes still in hospital mate, haven't heard much late. I don't like to hound her but I did send a text earlier so when I hear I will post here.

Thanks for asking.  :-*
Title: Re: Unicorns For Addy
Post by: Gyppo on September 12, 2013, 05:09:22 AM
I don't like to hound her but I did send a text earlier so when I hear I will post here.

It's  a difficult balancing act, knowing when to ask and when to let well alone for a while.  The family will be having odd moments when life seems almost normal, despite the looming threat.

Gyppo
Title: Re: Unicorns For Addy
Post by: fire-fly on September 12, 2013, 05:12:17 AM
True mate.

She text back not long ago to say Addy's blood count is still too low and all chemo has ceased until that picks up.

She is still in hospital though.
Title: Re: Unicorns For Addy
Post by: sugy on September 12, 2013, 11:35:24 PM
Tough times.  :(

It is very painful when one cannot do anything but wait and watch, 'hope' lingering.

Immense strength is what I wish for Addy and all those concerned.

Hope there is some great news somewhere down the road for little Addy and everyone around her.
Title: Re: Unicorns For Addy
Post by: fire-fly on September 12, 2013, 11:51:29 PM
I think they are going home today but because of her low counts, it will be two weeks between chemo treatment and that has them stressed out too.  ???
Title: Re: Unicorns For Addy
Post by: JewelAS53 on September 13, 2013, 08:53:44 AM
Check them out on FB  8) - Addy is home for the weekend :) She looks so happy to be there!
Title: Re: Unicorns For Addy
Post by: heidi52 on September 13, 2013, 03:13:44 PM
I'm glad she'll be home for a while, she must miss it so much.

Wish it was because she was all better and never had to go back.  :-* :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on September 13, 2013, 05:39:06 PM
Yeah I wish the same mate.  ;)

Jewel she loves going home, the other kids spoil her rotten cause she is their baby.  :D
Title: Re: Unicorns For Addy
Post by: DistantSun on September 13, 2013, 07:25:00 PM
I saw that post about how excited she was to get the go ahead to pack for home :D
Title: Re: Unicorns For Addy
Post by: fire-fly on September 13, 2013, 07:54:50 PM
 ;D ;D

Its been so long since photos of her smile have been up mate, its great to see isn't it.
Title: Re: Unicorns For Addy
Post by: sugy on September 14, 2013, 09:25:31 PM
I'm glad she'll be home for a while, she must miss it so much.

Wish it was because she was all better and never had to go back.  :-* :-*

My thoughts exactly.

Check them out on FB  8) - Addy is home for the weekend :) She looks so happy to be there!

No FB, but I can very well imagine that happy face! :)
Title: Re: Unicorns For Addy
Post by: Spell Chick on September 15, 2013, 05:10:35 PM
I have loved seeing all the pictures. Her brother was terrific, too.
Title: Re: Unicorns For Addy
Post by: fire-fly on September 15, 2013, 06:33:36 PM
 :D :D

He is the middle brother, she has three of them.

Yeah all the photos are great. Such a lovely family Patti.
Title: Re: Unicorns For Addy
Post by: wanderer on October 25, 2013, 11:06:07 PM
Curious how she is doing?
Title: Re: Unicorns For Addy
Post by: fire-fly on October 25, 2013, 11:15:19 PM
Sorry mate, I haven't updated.

Since my last post here, she has only been well enough for one round of chemo. She is supposed to have it weekly and I think it was five weeks before her blood was good enough to go.

She is bright as a button, giggling and loving getting her presents. Dawn sent her a gorgeous little beanie and jacket she made and Addy adored them both.  :D

She has had a platelet transfusion almost weekly and a few blood transfusions since back then too. ???

I think next week they are doing scans to see where it is up to now and then bring in the big guns to try to blast it, IF she can hold up to it.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on October 25, 2013, 11:26:15 PM
 ;)
Title: Re: Unicorns For Addy
Post by: wanderer on October 25, 2013, 11:31:51 PM
Thanks and I think about her quite often. Can only hope for the best.
Title: Re: Unicorns For Addy
Post by: fire-fly on October 25, 2013, 11:34:49 PM
Shes a little fighter mate. Apart from the bald head, she has no outer signs of being ill. She plays and jumps with her brothers and sisters so a bit of normal is back in there for now.
Title: Re: Unicorns For Addy
Post by: Gyppo on October 26, 2013, 04:49:18 AM
A time for cautious optimism then.  Maybe Odin and the other fellows are listening after all.

Gyppo
Title: Re: Unicorns For Addy
Post by: ma100 on October 26, 2013, 06:55:38 AM
Yes I live in hope it's the road back for her.
Title: Re: Unicorns For Addy
Post by: fire-fly on October 26, 2013, 07:51:15 AM
Yeah agreed, lets hope all the stars align.
Title: Re: Unicorns For Addy
Post by: Dawn on October 27, 2013, 07:11:34 PM
Here's hoping and praying.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 01, 2013, 02:34:09 AM
Hi guys,

Little Addy went in for a CT scan this week and the oncologist rang her parents earlier this afternoon. Here is the FB quote:

Quote
So the oncologist just phoned and the news isnt so good there is still tumour there and its still quite large unfortunately. .. we're heading to sydney next week for more tests and that will decide our plan... so not really the best news today...

I was talking to Addy's dad Michael and he is pretty gutted. The tumor is still the size of a golf ball and they don't know if it is alive or dead. The trip to Sydney will verify all that and either way, they have to operate to get rid of it.

Addy hasn't been able to have a lot of her treatments due to her poor blood work but they don't seem to think it would have made a difference anyway.  :'( :'(
Title: Re: Unicorns For Addy
Post by: Skip Slocum on November 01, 2013, 02:38:31 AM
We'll keep thinking happy thoughts.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 01, 2013, 02:41:24 AM
Thanks Skip, I'm feeling very negative right now.  ???
Title: Re: Unicorns For Addy
Post by: Dawn on November 01, 2013, 03:50:20 AM
Addy is such a fighter Ff. Keep that faith going Hun. I'm always here you know that. My shoulder is very comfy.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 01, 2013, 05:22:08 AM
 ;)

Thanks Dawn.  :-*
Title: Re: Unicorns For Addy
Post by: ma100 on November 01, 2013, 05:26:04 AM
The poor baby seems to have no breaks at all, but still she smiles, bless her. Try and stay positive, mate.  :'( :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on November 01, 2013, 05:30:48 AM
She does smile and she cops all the medical crap they throw at her Ma. I'm pissed off right now, this world is totally screwed.
Title: Re: Unicorns For Addy
Post by: Don on November 01, 2013, 06:16:47 AM
Addy is one of my heroes. There's more fight in that tot than most of the adults I know. I have high hopes of good news coming back from the Sydney trip. Always believe.
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on November 01, 2013, 06:53:19 AM
It does seem totally unfair for someone Addy's age has to go though all this. But we could all learn a lot for her and how she deals with this problem that would crush many adults.

My heart goes out to Addy and all who love her.
Title: Re: Unicorns For Addy
Post by: wanderer on November 01, 2013, 07:26:58 AM
Sad news.
Quote
I'm pissed off right now, this world is totally screwed.

Well, I agree with that feeling. :( Can't imagine what the parents are going through and thoughts should also be with them.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 01, 2013, 07:37:25 AM
That is the hardest bit for me Bill. Addy bounces along but to see the eyes of her dad today did my head in to be honest. They are trying so hard to keep it together.

Thanks guys for your beautiful wishes. I will keep you informed as they will me. Westmead is one of the top childrens hospitals in the world so she will be in great hands there.

I might wake up with a better mind set.  :-* :-*
Title: Re: Unicorns For Addy
Post by: 510bhan on November 01, 2013, 08:50:02 AM
Here's hoping the news is good news. ;)
Title: Re: Unicorns For Addy
Post by: Laura H on November 01, 2013, 09:21:04 AM
That is the hardest bit for me Bill. Addy bounces along but to see the eyes of her dad today did my head in to be honest. They are trying so hard to keep it together.

Thanks guys for your beautiful wishes. I will keep you informed as they will me. Westmead is one of the top childrens hospitals in the world so she will be in great hands there.

I might wake up with a better mind set.  :-* :-*

I can only imagine what the parents are going through :'( Sounds like she will be where she needs to be for treatment, and she has hugs coming form all over the world  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on November 04, 2013, 06:03:47 AM
Addy's uncle Ian is doing a walk to raise money for both Addy and the oncology unit Addy is being treated in.

The special piece of this story is Ian will be doing this unsighted, he has been blind for about 9 years now.

Here is the heading of the sponser form telling about what his walk is about.

I remember when he first lost his sight, just how scared he was with the unknown. Now he is walking with a cane for Addy, he is amazing.  :D

Ian Clements will walk from Clarence Town to Dungog along VIA Glen William and Alison Road to raise money for his 3 year old niece Addalyn who has Lymphatic T7 cell cancer.  Addalyn is currently undergoing Chemotherapy for a tumour, has no immune system and low white blood levels. Ian who has been blind for 9yrs will  do the walk  to raise funds to assist the family and the J1 Childrens Oncology ward at  John Hunter Hospital. Normally Ian would have his guide dog Jesse with him when he is out and about but because of the distance he has opted to use his cane and the assistance of several of his mates to accompany him. Ianís goal is to raise $10,000
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on November 04, 2013, 11:08:25 AM
Now that is what I call Loving Dedication.

Ian must be a special kind of person.  :-*

Title: Re: Unicorns For Addy
Post by: wanderer on November 04, 2013, 11:12:57 AM
An excellent gesture, and I'm sure it is well appreciated.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 04, 2013, 07:51:55 PM
Yeah he is a special sorta dude. Wild as in his youth, hence the loss of sight but an amazing adult with a beautiful family.

It will be appreciated without a doubt mate.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 08, 2013, 12:36:23 AM
Addy had her scans, no good news in them I am afraid. This is off her FB

Quote
The oncolgist just rang me and the tumour isnt dead... so now we have to move onto surgery to biopsy it again... its still close to her heart so removing it is too much of a risk..
Title: Re: Unicorns For Addy
Post by: Neghe on November 08, 2013, 01:00:57 AM
 :(

Crap.  >:(
Title: Re: Unicorns For Addy
Post by: fire-fly on November 08, 2013, 01:08:56 AM
Yeah mate, it is. She didn't say whether it has shrunk at all.

I didn't see the following status, not been on there a lot, but this was during the weeek

Quote
Hello to all the wonderful Addy supporters... We have a CT scan on Thursday finally... it feels like forever since we've had some positive movement forward... we are hoping for good results but mummy is a little worried that we had such a long break without chemo... and im not sure what this means in terms of tumour growth hoping no effect at all or its disappeared, but any shrinkage is better than none... not looking forward to having to get Addy canulated again, it is very distressing for her and mummy but the drs only like to access the port for chemo
As of tomorrow we have been at home 4 weeks with no fevers which mean no long hospital stays, just long visits for transfusions and checkups and blood tests...
And altho her bloods appear to be on their way down (she's pretty pale) she is still her strong headed active and bubbly self which is beautiful to see altho sometimes trying lol... will do my best to pass on results as soon as I can...
Thankyou all, talk soon xx
Title: Re: Unicorns For Addy
Post by: Skip Slocum on November 08, 2013, 01:44:15 AM
 ;D
Title: Re: Unicorns For Addy
Post by: Dawn on November 08, 2013, 02:52:39 AM
Just seen it mate. Bugger bollocks. Thinking of you all xxxxxx
Title: Re: Unicorns For Addy
Post by: Laura H on November 08, 2013, 07:13:23 AM
 :-[
Title: Re: Unicorns For Addy
Post by: DistantSun on November 08, 2013, 08:32:35 AM
Saw that one on FB last night :( Keeping Addy, Rachel and everyone in my thoughts. Good on ya Uncle Ian too :)
Title: Re: Unicorns For Addy
Post by: fire-fly on November 08, 2013, 09:03:18 AM
Here's a link to the newspaper article on Uncle Ian

http://www.dungogchronicle.com.au/story/1870868/ian-clements-is-doing-it-for-cancer-kids-and-adalyn/?fb_action_ids=10200923333828001&fb_action_types=og.likes&fb_source=other_multiline&action_object_map=[484610174980322]&action_type_map=[%22og.likes%22]&action_ref_map=[]
Title: Re: Unicorns For Addy
Post by: Laura H on November 08, 2013, 09:16:02 AM
Great article. I hope some good stuff comes about as a result.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 08, 2013, 11:00:45 AM
Yeah we are trying to get as many sponsers as we can that's for sure mate
Title: Re: Unicorns For Addy
Post by: Suemcb on November 24, 2013, 11:30:36 PM
Just seen on facebook that the results of the biopsy are pretty positive. Great to see some good news at last. Hope it gives a much needed boost to the whole family.
Title: Re: Unicorns For Addy
Post by: fire-fly on November 24, 2013, 11:42:42 PM
 :D :D

I was just online to post the facebook notification mate, its the best news they have had for a long time.

Quote
Well the biposy sample they got showed no evidence of live tumour so at this stage we continue on with the next standard protocol. .. so finally some good news! Of course she will be monitored and tested again...
But yay for a bit of positive!!
Title: Re: Unicorns For Addy
Post by: Neghe on November 24, 2013, 11:50:37 PM

Wow.


That's great.
Title: Re: Unicorns For Addy
Post by: JewelAS53 on November 25, 2013, 12:13:53 AM
What a relief! So glad to read good news.
Title: Re: Unicorns For Addy
Post by: Skip Slocum on November 25, 2013, 12:26:40 AM
Whee Haw!  ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on November 25, 2013, 12:28:02 AM
It has to be a real boost for all concerned to finally have so good news.

I have to admit though I'm especially happy for Addy. Such a special little girl to be dealing with all this and still be able to smile at life.  :-*
Title: Re: Unicorns For Addy
Post by: wanderer on November 25, 2013, 12:33:18 AM
Any positive news is great!
Title: Re: Unicorns For Addy
Post by: fire-fly on November 25, 2013, 01:46:15 AM
I know they want to take the tumor out but it is very close to her heart and they were hoping to shrink it initially, so I will find out about that side of it on Friday when I see them.

But this side is brilliant to say the least.  :D
Title: Re: Unicorns For Addy
Post by: Dawn on November 25, 2013, 02:54:59 AM
Whhhoooooooo just seen, just seen, so excited. Way to go Addy.
Title: Re: Unicorns For Addy
Post by: 510bhan on November 25, 2013, 03:25:57 AM
God bless, and may the good news continue. ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on November 25, 2013, 03:29:24 AM
Yes please  :D
Title: Re: Unicorns For Addy
Post by: Gyppo on November 25, 2013, 05:02:20 AM
Something positive at last.  Maybe the little scrapper has a better chance now.  Still a long road ahead, but...

Gyppo
Title: Re: Unicorns For Addy
Post by: Amie on November 25, 2013, 05:10:09 AM
Ah, wonderful that you're getting some good news. Young children can be incredibly resilient - I'll be hoping for the best for her.
Title: Re: Unicorns For Addy
Post by: Spell Chick on November 25, 2013, 09:06:17 AM
Best wishes for the whole family.
Title: Re: Unicorns For Addy
Post by: DistantSun on November 25, 2013, 10:39:11 AM
Awesome news!!  ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on December 02, 2013, 04:13:19 AM
Miss Addy went back into hospital yesterday to build her bloods up and pump fluids through her to get her kidneys functioning better for her next chemo round this week. She had a lumbar puncture today but I don't know what that was for.

She is in for four days, home for ten and that will be a cycle for a while. I think its to try to shrink the tumor for removal.
Title: Re: Unicorns For Addy
Post by: 510bhan on December 02, 2013, 08:03:22 AM
Does that schedule mean she'll be able to have Christmas at home?
Title: Re: Unicorns For Addy
Post by: fire-fly on December 02, 2013, 07:18:19 PM
I'm not sure mate, I really hope so. I think they try their hardest to have empty beds at Xmas.

It will all depend on how her little body takes it too. She will be up to round three by then.
Title: Re: Unicorns For Addy
Post by: Gyppo on December 02, 2013, 07:31:38 PM
We're all pulling for her.  The little battler.
Title: Re: Unicorns For Addy
Post by: fire-fly on December 02, 2013, 07:32:37 PM
 :D :D

That she is Gyp. They raised some nice dollars for her with the walkathon which was great to see.
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 06:17:17 AM
A little Addy update:  :D

She spent Christmas with the family, no hospital run which is excellent.

Here is a photo of all the kids taken this morning.

(http://i470.photobucket.com/albums/rr61/firefly254/Home/Clements_zps4dc36041.jpg)
Title: Re: Unicorns For Addy
Post by: heidi52 on December 25, 2013, 06:20:34 AM
What a wonderful Christmas present! So glad she's doing better.

No one is awake here but me, this is a great start to my day.  ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 06:22:50 AM
 :D :D

It was indeed a great gift for them mate

What time is it there?
Title: Re: Unicorns For Addy
Post by: bri h on December 25, 2013, 06:23:57 AM
Lovely photo L. Wish I was there with all those kids in the house. What proper Christmas is all about. Lots of noise, ooh's and aah's. Smiles all around. Am so jealous. All the best chuck, glad to see Addy home for Christmas. She looks so cute. As do all of them. xbx
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 06:25:33 AM
 :D :D

Yep, it goes by way to quick mate, all the noise and oohs and aahs ay.
Title: Re: Unicorns For Addy
Post by: Gyppo on December 25, 2013, 06:34:58 AM
So good to see she was at home for Christmas.
Title: Re: Unicorns For Addy
Post by: 510bhan on December 25, 2013, 06:38:26 AM
Everybody looks great. Hope they had a great day and that Addy's health continues to improve. ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 06:56:53 AM
She has it all ahead of her but she looks great now doesn't she ;D

Hospital Monday I think.
Title: Re: Unicorns For Addy
Post by: Gyppo on December 25, 2013, 09:11:38 AM
She looks ready to meet it, head on ;-)
Title: Re: Unicorns For Addy
Post by: Don on December 25, 2013, 09:25:09 AM
I'm looking forward to an updated picture next Christmas. Go, Addy.  :)
Title: Re: Unicorns For Addy
Post by: Skip Slocum on December 25, 2013, 10:44:09 AM
 ;D Whee haw, Gram-Fly  ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 04:42:39 PM
 :D :D

She is a bundle of fizz since they got the first round of treatment in. She just looked so sick back then and was.

Shes a giggling girt when you talk to her and leads the mischief in their house.

Her dad has always said "Addy is the one that makes me laugh"  :P
Title: Re: Unicorns For Addy
Post by: ma100 on December 25, 2013, 06:13:02 PM
It is wonderful to see her Beautiful face with her family at Xmas. :-* Go Addy. :)
Title: Re: Unicorns For Addy
Post by: Pale Writer on December 25, 2013, 06:26:43 PM
Smiles are the best present ever, especially the joy which comes with them.

Nice to see, lil glo. Thanks for sharing.
Title: Re: Unicorns For Addy
Post by: Spell Chick on December 25, 2013, 06:28:23 PM
Loved the whole Merry Family when I saw it on Facebook. I bet there were a bazillion kisses going around. What a happy pose.
Title: Re: Unicorns For Addy
Post by: fire-fly on December 25, 2013, 07:25:43 PM
 :D :D

The Snot Monster had to get out there at 10 to see all the kids, they disperse in all directions.

Yes a lot of that, Snotty loves Addy the best she tells me, so cute. Addy and Snotty teamed up from the get go.

My daughter took a lot of shots of them but I did steal this one off FB. I loved it with the whole mob  :P
Title: Re: Unicorns For Addy
Post by: JewelAS53 on December 26, 2013, 12:15:35 AM
What a wonderful occasion for them all.
Title: Re: Unicorns For Addy
Post by: fire-fly on December 26, 2013, 01:32:03 AM
Sure was  ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on December 26, 2013, 06:35:59 PM
Linda, it did my heart good to see this picture of Addy with the whole gang gathered round.

The best gift in Santa's bag of tricks.  ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on December 26, 2013, 07:09:34 PM
Yes Alice it was indeed mate.  :D

She still has hair too....this week.  ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2014, 02:28:52 AM
The below message was posted today on Addy's site. She has had a rest from the hard core chemo but its back full on now. Her hair had started to grow back beautifully and all.

The last round was a mild round, these are the big guns so some nice prayers etc would be appreciated.  :-*

Little Addy is having a rough time on her latest treatment...let's send her some love... Xoxoxo
Title: Re: Unicorns For Addy
Post by: Dawn on February 27, 2014, 02:34:22 AM
Awwww no. Sending every ounce of love I have.
Title: Re: Unicorns For Addy
Post by: bri h on February 27, 2014, 03:16:18 AM
I really hope the Anth sells well. I hate seeing these horrible things happening to the innocents. Thinking of her this morning. xbx
Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2014, 05:35:40 AM
Thanks guys, she is struggling a lot poor little poppet.  ???
Title: Re: Unicorns For Addy
Post by: heidi52 on February 27, 2014, 06:29:13 AM
Poor baby. Prayers for her and for you, too.  :-*
Title: Re: Unicorns For Addy
Post by: ma100 on February 27, 2014, 09:10:55 AM
I bet she is, bless her.  :'( She'll be in my prayers. :-*
Title: Re: Unicorns For Addy
Post by: 510bhan on February 27, 2014, 09:25:08 AM
Lots of love and prayers for the little one from here.
Title: Re: Unicorns For Addy
Post by: Neghe on February 27, 2014, 12:45:27 PM
Sending goodness.

Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2014, 03:16:16 PM
Thanks again to everyone.

Ellie is spending the weekend there so hopefully that cheers her up but the chemo is really hard on her, as it would be with thousands of kids globally.  ???
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on February 27, 2014, 03:32:31 PM
After watching what Rob went through, it breaks my heart knowing that youngsters like Addy have to deal with the same thing.

Wishes, prayers and anything else that is send-able right now are on their way.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2014, 03:33:31 PM
I'm with you Alice. I'm glad the stuff has improved over the years too.
Title: Re: Unicorns For Addy
Post by: Zepphy on February 27, 2014, 07:51:46 PM
All the best wishes to the sweet little girl, fly. She's a fighter.
Title: Re: Unicorns For Addy
Post by: Laura H on February 27, 2014, 07:56:34 PM
Doggone it. I hoped she was done with the treatments, know I know she'll battle on like Xena  :-*
Title: Re: Unicorns For Addy
Post by: Gyppo on February 27, 2014, 07:59:12 PM
I gather the poor little lass still has a long way to go, but she's still in there, still fighting.  Usual wishes and prayers to the little Warrior Maid.

Gyppo
Title: Re: Unicorns For Addy
Post by: irallan on February 27, 2014, 08:24:03 PM
So sorry to hear this FF . Wishing the little Addy all the best. Watching my Father going throgh Chemo has opened my eyes to what is really involved. So much harder when its a child. Know this must be hard for you all. Sending Loving and healing thoughts for her. All the best for you all. Iain.
Title: Re: Unicorns For Addy
Post by: Don on February 27, 2014, 11:19:19 PM
If anyone needs a case study in tenacity, they need look no further.

Give Addy a big hug for me, FF.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 28, 2014, 02:00:48 AM
 :-* :-* :-*

To all of you
Title: Re: Unicorns For Addy
Post by: Dawn on March 05, 2014, 03:08:53 PM
Not sure on time difference

But Happy birthday sweet, Addy for tomorrow.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2014, 03:42:47 PM
 :D :D

Its morning here mate and yes, it is her 4th birthday now. She has an early round of chemo then the day is hers.

Her mum is excited cause this time last year, just after her birthday, they found out how sick she was and nearly lost her in the first few weeks.  ???
Title: Re: Unicorns For Addy
Post by: 510bhan on March 05, 2014, 03:44:08 PM
Yay! Hope she has a good one with her brothers and sisters, Mum and Dad and they all have a great time.
Title: Re: Unicorns For Addy
Post by: ma100 on March 05, 2014, 03:45:25 PM
I hope she has a wonderful time. :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: bri h on March 05, 2014, 03:48:32 PM
Is she still in the 'ospital? Bless her. xbx
Title: Re: Unicorns For Addy
Post by: Gyppo on March 05, 2014, 03:49:17 PM
Happy birthday to the wee scrapper.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2014, 04:57:18 PM
Thanks dudes.  :D

She goes into hospital for the chemo and they send her home now mate. I'm not sure how long she stays in, depends on how her body reacts and if she need transfusions of any sort at the time.

She is getting a beating with this round though, little poppet.
Title: Re: Unicorns For Addy
Post by: DistantSun on March 05, 2014, 05:03:33 PM
I like the cute little shaggy short hair on her though. She looks happy to be opening her prezzies :D
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2014, 05:12:31 PM
 :D :D

The cutest smile Sunny.

She has grown up so much in a year.
Title: Re: Unicorns For Addy
Post by: ma100 on March 05, 2014, 05:19:27 PM
Poor might had no choice, bless her. :(  The whole family must be running on automatic pilot.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2014, 05:28:31 PM
Yeah they are. She loves birthdays though  :P
Title: Re: Unicorns For Addy
Post by: Neghe on March 05, 2014, 05:32:36 PM

Why wouldn't she? I mean, there'll be cake.  8)
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2014, 05:45:43 PM
 :D :D :D
Title: Re: Unicorns For Addy
Post by: fire-fly on March 17, 2014, 11:08:59 PM
An update on our girl, she isn't doing too well this week unfortunately.  ???

Quote
Poor miss addy is in hospital. .. she came in last Friday with high temps... the temps have continued and now she's got really bad mouth sores she's on a cpl different antibiotics and morphine for pain but really few neutrophils would be wonderful atm... to help her fight infection on her own... we've had huge issues with her port which is where she gets her chemo and they take blood but it seems to be working today but not before they had to canulate ... fingers crossed it stays working.. she is still herself though, toughing it out as usual...xxx
Title: Re: Unicorns For Addy
Post by: Neghe on March 18, 2014, 01:19:08 AM

Along with my diabetes came horrible mouth sores: coconut milk is the only thing that keeps me off the morphine. I can't go more than two days without it before they start to come back.

Tell them about it.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 06:44:08 AM
Thanks Neg, I will do that mate  :-*
Title: Re: Unicorns For Addy
Post by: ma100 on March 18, 2014, 06:47:30 AM
Bless her heart. :'(
Title: Re: Unicorns For Addy
Post by: heidi52 on March 18, 2014, 06:52:12 AM
Our thoughts go out to the little one Fly. Poor baby.  :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 07:13:17 AM
Yeah thanks guys. I just hate it when it gets this hard for them. Shes such a little character, bloody sucks.  ???
Title: Re: Unicorns For Addy
Post by: Gyppo on March 18, 2014, 07:27:56 AM
Poor old Odin must think he's on speed dial.

We're all pulling for her.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 10:55:59 AM
 :-*

Thanks mate
Title: Re: Unicorns For Addy
Post by: JewelAS53 on March 18, 2014, 11:16:27 AM
Just seen on fb that Addy's having a tough time. So hard for all the family. Hugs and prayers to them all.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 11:42:56 AM
Yeah it breaks your heart ay mate
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on March 18, 2014, 12:34:30 PM
Life can be so hard, then at other times it really sucks.

Praying that Addy soon rides her unicorn to the end of the rainbow and find a pot filled with good health and no more chemo needed.
Title: Re: Unicorns For Addy
Post by: bri h on March 18, 2014, 03:46:21 PM
Thinking about her today. B
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 06:18:42 PM
Thankyou Alice and Bri.
Title: Re: Unicorns For Addy
Post by: Don on March 18, 2014, 06:56:15 PM
I might have said this before but it bears repeating. If one needed a lesson in perseverance, there would be no need to look further.

Hugs and prayers for the munchkin.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 07:06:49 PM
 :D

Totally agree Don, thanks.  :-*
Title: Re: Unicorns For Addy
Post by: Laura H on March 18, 2014, 07:20:59 PM
Poor little Gal. I think of her often  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 07:32:47 PM
Yep, she gets under your skin mate.  ;)
Title: Re: Unicorns For Addy
Post by: Dawn on March 18, 2014, 07:38:54 PM
Thinking of Addy always.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 08:40:25 PM
 :-* :-*
Title: Re: Unicorns For Addy
Post by: wanderer on March 18, 2014, 09:14:35 PM
Appreciate the updates, Linda. As others, I do think about her often.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 10:01:35 PM
Thanks Bill, hopefully it all helps mate
Title: Re: Unicorns For Addy
Post by: DistantSun on March 18, 2014, 10:33:27 PM
I might pick up some stickers and a few little fun things and send them her way, via you ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on March 18, 2014, 11:42:43 PM
 :-*

I'm sure she would love that mate.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 19, 2014, 01:47:04 AM
A bit more Addy news

Quote
Well lil Miss has no neutrophils so now we have to have a drug called GCSF to try and get her body to produce white blood cells and start fighting the fevers. Hopefully this works and she can come home in a couple of days.
Title: Re: Unicorns For Addy
Post by: heidi52 on March 19, 2014, 07:54:59 AM
The word home sounds promising. Fingers crossed!
Title: Re: Unicorns For Addy
Post by: fire-fly on March 19, 2014, 08:13:44 AM
Yeah for sure Heidi. Her poor mum misses the other kids and normal life so much when she has these long stints. It must be so hard  ???
Title: Re: Unicorns For Addy
Post by: Tom 10 on March 19, 2014, 12:40:23 PM
Add my prayers to the others.
Title: Re: Unicorns For Addy
Post by: Niav.Corky on March 19, 2014, 12:44:09 PM
Liked and passed on.

Prayers are with the family.
Title: Re: Unicorns For Addy
Post by: DGSquared on March 19, 2014, 04:57:52 PM
We've got a poster to send, FF.  My husband made it.

Hope Addy likes it. I just need you to PM me the address so we know where to send it.


<3 Hugs

~Deb
Title: Re: Unicorns For Addy
Post by: fire-fly on March 20, 2014, 12:30:30 AM
Thanks everyone  :-*

PM'd Deb  :-*

A bit more info

Quote
Miss Addy spiked very high temps last night... 39.6 and 40.2
And today she needs blood AND platelets... poor baby can't catch a break!

Things have gone really well for a few months but now the steroids and stronger chemo are back, her little body isn't coping real well.  :'(
Title: Re: Unicorns For Addy
Post by: DGSquared on March 20, 2014, 12:48:13 AM
I'm sorry Linda. Poor little thing. I hope the package gets there soon. It will go out tomorrow, first thing.

Prayers are with Addy tonight.

Darren said, "Unicorn power!"
Title: Re: Unicorns For Addy
Post by: fire-fly on March 20, 2014, 01:55:03 AM
 :D :D

Unicorn Power, I love that one.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 20, 2014, 04:39:48 PM
Another update  :'(

Quote
Miss Addy is still very unwell and still having very high fevers... still on lots of antibiotics and morphine for pain and G-csf to hopefully grow some neutrophils. She's had both blood and platelets today..
they're still baffled as to whats causing her fevers because nothing is growing from her blood or swab cultures and they are now doing xrays and ultrasounds to see if there's anything that can help them out there...
so fingers crossed for some answers to point us in the right direction and hopefully some healthy cell growth from her bone marrow.. will keep you all posted as we can ♡

Her mum said she had an X-ray last night around 11 and has an ultra sound today
Title: Re: Unicorns For Addy
Post by: heidi52 on March 20, 2014, 04:42:44 PM
So sad.  :'( :'(
Title: Re: Unicorns For Addy
Post by: ma100 on March 20, 2014, 04:43:19 PM
The poor wee scrapper. :-* I hope they find whats wrong quickly. She doesn't need anymore on top of what she is going through. Always in my prayers. :-*
Title: Re: Unicorns For Addy
Post by: 510bhan on March 20, 2014, 04:45:51 PM
Thinking of Addy and her family -- hope they get answers and positive results soon.
Title: Re: Unicorns For Addy
Post by: bri h on March 20, 2014, 04:45:57 PM
Always saddens me when I hear/see kids suffering like this. Am still thinking of her. xbx
Title: Re: Unicorns For Addy
Post by: DGSquared on March 20, 2014, 04:48:45 PM
I'm leaving to mail her unicorn poster now, Mate.

Poor little one must be miserable.  :'(

Hope the package helps her smile.

Off to the post office.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 20, 2014, 07:34:58 PM
Rach says shes a fighter and powering away so that is the best news.
Title: Re: Unicorns For Addy
Post by: DGSquared on March 20, 2014, 07:52:12 PM
Well, 'Unicorn Power' is on the way. Hope she likes it. :)
Title: Re: Unicorns For Addy
Post by: thatollie on March 20, 2014, 08:29:49 PM
We're all rooting for her.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 20, 2014, 11:12:00 PM
 :-* :-*

You are all beautiful amazing people
Title: Re: Unicorns For Addy
Post by: DistantSun on March 24, 2014, 04:08:14 PM
Check your email inbox Fly - the kids and I worked on my crazy unicorn-themed idea today, so I'll be putting something in the post tonight (let me know when it gets to you).
Title: Re: Unicorns For Addy
Post by: fire-fly on March 24, 2014, 04:41:26 PM
 ;D ;D

I just peeked, how cute is that, she will love it mate.  :-* :-* Thankyou.

Here is the latest post on the FB page. It appears she is getting a little better  :D

Quote
Miss Addy is doing better today... she's got good white cell growth and finally a good amount of neutrophils to fight the infection... shes had no fever for 24 hrs now which is wonderful. .. she still has mucositis so she's not eating or drinking a great deal but overall she is finally on the mend... thanx for all your words or encouragement and support... xx
Title: Re: Unicorns For Addy
Post by: Gyppo on March 24, 2014, 04:43:45 PM
That's good news.
Title: Re: Unicorns For Addy
Post by: heidi52 on March 24, 2014, 04:44:52 PM
Wonderful news! Hope the good trend continues. Boy, she's a fighter!  ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on March 24, 2014, 05:22:55 PM
It wonderful to finally get some good news after all she's been dealing with of late.  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on March 24, 2014, 08:43:41 PM
Yeah it really is guys. Her mouth is so sore poor little thing. But at least she is on the mend again  :)
Title: Re: Unicorns For Addy
Post by: Neghe on March 24, 2014, 08:45:39 PM

If it is anything like I had, water was like gasoline.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 24, 2014, 10:26:05 PM
I passed on your suggestion mate and she was going to try it for sure.
Title: Re: Unicorns For Addy
Post by: JewelAS53 on March 25, 2014, 04:36:02 AM
Saw that one on FB. Great to see the improvement.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 25, 2014, 05:58:24 AM
Yeah it puts a bounce in your step to know she is on the up and up mate  ;)
Title: Re: Unicorns For Addy
Post by: Dawn on March 25, 2014, 07:26:45 AM
So glad she is home.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 26, 2014, 01:34:44 AM
One very happy mummy  ;D

(http://[center]http://i470.photobucket.com/albums/rr61/firefly254/Addiy_zps65b07437.jpg[/center])
Title: Re: Unicorns For Addy
Post by: DGSquared on March 26, 2014, 02:40:54 AM
Good news to see the little one back home, Linda.  :)

I invited my friends to like the f/b page and show support. I think about seven have so far, including my brother-in-law.  :)


Poor little Addy looks swollen from the chemo. I bet her Momma and siblings are happy to have her home.
Title: Re: Unicorns For Addy
Post by: ma100 on March 26, 2014, 03:42:43 AM
One very happy mummy  ;D

(http://[center]http://i470.photobucket.com/albums/rr61/firefly254/Addiy_zps65b07437.jpg[/center])

One happy little girl too I suspect. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on March 26, 2014, 04:15:39 AM
I posted a photo as well but I can't see it. Can anyone?  ???
Title: Re: Unicorns For Addy
Post by: ma100 on March 26, 2014, 04:17:33 AM
No mate.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 26, 2014, 04:20:16 AM
Bloody hell, I can't see it again?  ???

Another try

(http://i470.photobucket.com/albums/rr61/firefly254/Addiy_zps65b07437.jpg)
Title: Re: Unicorns For Addy
Post by: ma100 on March 26, 2014, 04:22:06 AM
I can see it this time.  ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on March 26, 2014, 04:35:13 AM
I see it and it breaks my heart - that woe-be-gone expression I mean.

Makes me want to wrap her in my arms and protect her from the big, bad world. Wish it were that easy, but unfortunately . . .

 :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on March 26, 2014, 06:48:49 AM
You are right Alice but she is still alive that's the best thing.

A little girl they were supporting for the same disease lost her fight today  :'(
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on March 26, 2014, 07:08:54 AM
You are right Alice but she is still alive that's the best thing.

A little girl they were supporting for the same disease lost her fight today  :'(

 :'(    :'(    :'(

You're right - as long as she can fight, there's hope.
Title: Re: Unicorns For Addy
Post by: Laura H on March 26, 2014, 07:09:09 AM
That's so sad  :'(
Title: Re: Unicorns For Addy
Post by: ma100 on March 26, 2014, 07:20:07 AM
That is very sad, but the family must still keep positive. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on March 26, 2014, 07:25:50 AM
I think it makes them all fight harder to be honest. Being home is a big thing for her
Title: Re: Unicorns For Addy
Post by: ma100 on March 26, 2014, 07:29:14 AM
I bet she is over the moon, bless her. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on April 04, 2014, 02:37:55 AM
WHOOP WHOOP WHOOP.............
[/i]

News from the FB page today:

Quote
We got some really good news this morning... it appears that the tumour in addys chest has calcified, meaning it appears to be DEAD... this is awesome news for us.... the dead tumour is still there of course and it may never go away but it is no longer cancerous... so now we just have to kill any of the mutated little cancer cells that may be floating around her body... this is as close to a 'remission' as we can get... yay..
On the downside Addys bloods were no good today so chemo is on hold until they bounce back...

Today was to be her last Chemo but she was too unwell. She is now on maintenance for the next 14 months.

Her dad said the tumor will stay in her chest at this stage but is dead right through.

They will be on the lookout for anything else that may pop up though, soooooo happy   :D :D
Title: Re: Unicorns For Addy
Post by: ma100 on April 04, 2014, 03:01:50 AM
That is fantastic news. ;D ;D ;D :-* :-* :-*
Title: Re: Unicorns For Addy
Post by: Neghe on April 04, 2014, 03:38:40 AM

Wow.
Title: Re: Unicorns For Addy
Post by: DGSquared on April 04, 2014, 03:53:50 AM
Saw this on the f/b page earlier. Wonderful news indeed.


Are you still going to see her on Friday, FF?

The magic of unicorns. ;)
Title: Re: Unicorns For Addy
Post by: Gyppo on April 04, 2014, 04:31:19 AM
Her dad said the tumor will stay in her chest at this stage but is dead right through.

They will be on the lookout for anything else that may pop up though, soooooo happy   :D :D

Yes!  I may even take a chance and dance a (cautious) hornpipe to celebrate the demise of that evil growth

Despite knowing there could still be problems, this is fantastic.  And one less round of chemo has to be a blessing for her little body.

Gyppo
Title: Re: Unicorns For Addy
Post by: heidi52 on April 04, 2014, 06:15:50 AM
What wonderful news first thing in the morning.

It's going to be a good day.

Still sending positive energy so she can now get on with just being a beautiful little girl.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 04, 2014, 07:04:59 AM
 :D :D :D

It made a very ordinary week extraordinary that's for sure.

I seen her dad today with all the kids except Addy. Because her bloods are down, they keep her home to be on the safe side.

He was super stoked with the beautiful poster Deb and the rest of her loot was left for Addy and Rachael to explore Sunny.

You guys are so great, thanks heaps and Gyp, keep ya clothes on in that dance won't you mate. >:D
Title: Re: Unicorns For Addy
Post by: Gyppo on April 04, 2014, 08:06:31 AM
Relax.  I don't dance naked ;-)

I nearly broke my bloody neck, capering around like a Polar Bear on Speed as the tune got faster, but it was worth it to celebrate.  It may take me a week to recover ;-)
Title: Re: Unicorns For Addy
Post by: DistantSun on April 04, 2014, 08:07:39 AM
 ;D ;D

Perfect timing for our gifts to arrive eh Deb! Happy dances all round!!
Title: Re: Unicorns For Addy
Post by: 510bhan on April 04, 2014, 09:07:36 AM
Great news -- here's hoping for her continued recovery and regaining her strength and mischief. ;)
Title: Re: Unicorns For Addy
Post by: Andrewf on April 04, 2014, 09:56:36 AM
 ;D ;D ;D ;D ;D ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: midnight candle on April 04, 2014, 10:31:20 AM
great news  :)
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on April 04, 2014, 10:43:22 AM
What wonderful news to read this morning. Can't think of anything I would rather have seen.  :-*    :-*    :-*
Title: Re: Unicorns For Addy
Post by: wanderer on April 04, 2014, 11:39:24 AM
Just amazing and so well deserved. Glad for the news !
Title: Re: Unicorns For Addy
Post by: bri h on April 04, 2014, 02:17:39 PM
Was gonna post that I'd got my copy of the anthology. But I'm more pleased at this news. It's bigger and better news. My whole weekend is lifted. I suspect I'll be smiling next week as well. Great news. xbx
Title: Re: Unicorns For Addy
Post by: DGSquared on April 04, 2014, 04:02:01 PM
:D :D :D

It made a very ordinary week extraordinary that's for sure.

I seen her dad today with all the kids except Addy. Because her bloods are down, they keep her home to be on the safe side.

He was super stoked with the beautiful poster Deb and the rest of her loot was left for Addy and Rachael to explore Sunny.

You guys are so great, thanks heaps and Gyp, keep ya clothes on in that dance won't you mate. >:D
Guess that answers the question in the message I sent you. I'm glad her dad was pleased. We can't wait to hear what Addy thinks.  :)  Is he taking the posters to Addy today or Sunday?
Title: Re: Unicorns For Addy
Post by: Don on April 04, 2014, 04:54:47 PM
Never underestimate the collective power of magic. Go, Addy. :)
Title: Re: Unicorns For Addy
Post by: DGSquared on April 04, 2014, 04:57:44 PM
Unicorn magic.   ;)
Title: Re: Unicorns For Addy
Post by: Dawn on April 04, 2014, 05:17:32 PM
Way to go our little fighter. Made up for you all xx
Title: Re: Unicorns For Addy
Post by: fire-fly on April 04, 2014, 05:35:54 PM
Deb she is home at the moment, hospital next week for that final hit of chemo mate. She was just a bit not Addy to ride in the car for the 20 minute each way trip.  ;)

Gyp hope you recover and everyone else, it is the best news. Glad your copy arrived with such speed Brian, I haven't ordered mine yet, best be getting a wiggle on me thinks.  :D

What a beautiful day, a magic day  ;D ;D
Title: Re: Unicorns For Addy
Post by: bri h on April 04, 2014, 05:39:44 PM
Should make that a holiday-day from now on. When everythings looking rosy and free of worry, have an 'Addy-Day.'  ;D xbx
Title: Re: Unicorns For Addy
Post by: DGSquared on April 04, 2014, 05:53:07 PM
We couldn't be more pleased to hear the news, Linda.  :)

Will this be the last time she has to go in for chemo? Does she stay overnight? I can't imagine how frightening it must be for her and everyone in her family the first time they see the people who administer the chemo in quasi- hazmat suits. :-\





I wouldn't imagine they'd send little ones to those chemo assembly lines. My M-I-L had to go to one of those places a few times. They're awful. Do they have them there?

 
Title: Re: Unicorns For Addy
Post by: fire-fly on April 04, 2014, 06:49:43 PM
I like that idea Bri  ;D

I'm not sure Deb, I think they do in the city. I think here, they try to make the kids area a bit more pleasant and friendly. She is part of the furniture now which is good for her
Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 08:21:44 AM
Seen Michael today when I picked up Miss Ellie. Little Addy landed back in hospital today because of internal bleeding from the masses of ulcers she has throughout her system  ???

One of her cousins was having a birthday party, complete with clowns and face painting and she soooo wanted to go. She was just too sick and soooo disappointed, I felt so so sorry for her, she misses a lot the little darlin.

But she held her posters up to all their visitors Deb and told them the story of all the Unicorns and her  :D :D Michael said she loved it a lot.

She also shared the toy package with her sisters, on loan of course Sunny and they loved the enclosed letters, that meant a lot to them both  :-*

She gets a platelet transplant soon to help her start fighting off these infections. I think the last chemo still has to go ahead though
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on April 06, 2014, 08:59:12 AM
FF, after seeing first hand all the nasty stuff Rob when through in his fight, it hurt to think of someone so young having to deal with much the same thing. I so hope and pray all this will soon be a thing of the past for Addy.  :-*
Title: Re: Unicorns For Addy
Post by: DistantSun on April 06, 2014, 09:53:53 AM
:( I saw those tired little cuddly pictures on the page. I often think of Rachel and Michael and the other kids too, and how they're handling all this. Don't mind at all if she has her prezzies looked after for a bit :)
Title: Re: Unicorns For Addy
Post by: Laura H on April 06, 2014, 12:11:05 PM
Poor little Babe  :'(
Title: Re: Unicorns For Addy
Post by: Dawn on April 06, 2014, 01:27:53 PM
Such a shame, hope this little one gets a break soon. Sending all my love.
Title: Re: Unicorns For Addy
Post by: Neghe on April 06, 2014, 03:37:22 PM
 :( :'( :( :'(
Title: Re: Unicorns For Addy
Post by: ma100 on April 06, 2014, 03:57:37 PM
Bless her heart, well when she feels a little better, perhaps they can have an Addy party she can enjoy. :'( :'( :'(

This baby is a wonderful little girl. Keep fighting honey. :-* :-* :-* All the positivity I can muster heading your way.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 04:05:03 PM
An Addy party sounds like the go mate, with the clown.  :D

Might suggest that to them for a bit down the track. She should be bouncing come our spring and ready for a party.

Title: Re: Unicorns For Addy
Post by: DistantSun on April 06, 2014, 04:18:37 PM
Good suggestion Ma :) I'm sure there will be some celebrating going on when she finally gets the all-clear.
Title: Re: Unicorns For Addy
Post by: DGSquared on April 06, 2014, 04:21:56 PM
Seen Michael today when I picked up Miss Ellie. Little Addy landed back in hospital today because of internal bleeding from the masses of ulcers she has throughout her system  ???

I'm sorry to hear that, Linda. Poor little girl. What a miserable thing to have to go through.  :'( :( What a roller coaster for her and the family. I hope the ulcers are not cancerous. :-\


One of her cousins was having a birthday party, complete with clowns and face painting and she soooo wanted to go. She was just too sick and soooo disappointed, I felt so so sorry for her, she misses a lot the little darlin.

That is hard for little ones.  :(   I'm a grownup (in years anyway) and I hate to miss parties.

But she held her posters up to all their visitors Deb and told them the story of all the Unicorns and her  :D :D Michael said she loved it a lot.


I would have loved to hear that story. I can only imagine but I'm sure she is precious as a storyteller. There are a lot of unicorns on those posters. We are pleased that Addy finally received them and it brought her some happiness and a little distraction.  :)  She can hang one on the hospital wall, leave one at home, and have the 8 x 10's to hold in her hands and see close up.

Maybe they can provide a distraction while she's being poked with needles. Jeez, what a heartbreaker.  :'(


She gets a platelet transplant soon to help her start fighting off these infections. I think the last chemo still has to go ahead though

 :( :'( I hope the "Unicorn Power" posters help.

We're all pulling for her.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 04:33:28 PM
 :-* :-*

Thanks mate
Title: Re: Unicorns For Addy
Post by: DGSquared on April 06, 2014, 04:58:26 PM
You're welcome, Linda.  :)   :-* :-*

I wish we could do more.


I cannot imagine what her parents and siblings are going through. It is terrible to love an adult who has been diagnosed with cancer and watching what they go through but it seems like an unbearable burden for a child and the child's family.


I hope Addy recovers soon and the trauma quickly becomes a vague, if not forgotten, memory for her.

Without even knowing Addy, my eyes water thinking of her and her family. That little girl has touched the heart of everyone here and that is directly related to what a wonderful person you are. How many people have reached out to her and the family because of you bringing awareness to us about her situation?

I think it's safe to say of everyone here, we kinda' like you.  ;) ;D :P  :-* :-*

Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 05:56:00 PM
Thanks again Deb  :-*

For those not on her FB page, this is the latest and the accompanying photos.

She has the most amazing eyelashes and I am amazed they stay through each treatment

Quote
Little Miss Addy is unwell again... she's been vomiting alot of blood and has high fevers... she's on some antibiotics and will get some platelets soon... her heart rate is quite high and her little body is struggling a bit with the extra pressure
poor little thing is definitely not feeling well...


(http://i470.photobucket.com/albums/rr61/firefly254/saddd_zpsd1455099.jpg)

(http://i470.photobucket.com/albums/rr61/firefly254/sadd_zpscb6da7d3.jpg)

(http://i470.photobucket.com/albums/rr61/firefly254/Sad_zpse3317b74.jpg)
Title: Re: Unicorns For Addy
Post by: bri h on April 06, 2014, 05:59:50 PM
Saw these on Fb, but not this close up. Aww. I bet she looks forward to sleep. No pain (hopefully?) I really get sad whenever I see the little-uns suffer. x
Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 06:07:29 PM
Sorry about the big, I don't know how to do small mate but they do tug at you don't they.
Title: Re: Unicorns For Addy
Post by: bri h on April 06, 2014, 06:20:11 PM
Nah, no probs luv. It kinda hits you 'deeper.' xbx
Title: Re: Unicorns For Addy
Post by: DGSquared on April 06, 2014, 11:06:07 PM
I read on f/b that the family all shaved their heads.  8)

Did you enlist to have yours shaved too, FF? ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on April 06, 2014, 11:14:27 PM
 :o :o :o

My heads rough enough with hair mate

They call Rachael Russell now she told me. :-)
Title: Re: Unicorns For Addy
Post by: DGSquared on April 06, 2014, 11:24:04 PM
You know, I had to chuckle there thinking, FF says she has a rough head.   ;D:P  Sounds funny. It may not be, but it sounds that way to me right now. I don't know why. Tomorrow, I'll read this and wonder... 8)
Title: Re: Unicorns For Addy
Post by: fire-fly on April 13, 2014, 09:50:24 PM
Another Addy update, she has been in hospital for over a week now the poor little poppet.  :(

Quote
Still no coming home for Miss Addy... she grew a staph infection from her blood cultures on thursday night but we didnt find out till yesterday and now needs an extra 5 days of treatment. .. (from thurs we think?)
The little bit of neutrophils and white cells she had grown has now been eaten up again from fighting the staph and strep infections she also needed another platelet transfusion yesterday so she has been busy...so that's 2 lots of platelets and 1 blood in a week ; ( she's got the respiratory team coming to look at this persistent cough she has but their not expecting any major discoveries from them lol... all xrays are still clear of infection..
Overall though she is pretty well... her eating is finally picking up a bit which is fantastic for the production of the cells she trully needs right now...
Mum and dad are a little worried as to why she's not producing anything but the drs are all good with it and have no concerns just yet...
At this stage we're really hoping we can just get her out for easter when the fluffy bunny will leave his footprint all over the house lol ♡ mum
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on April 13, 2014, 10:01:42 PM
Hugs and love go out to Addy and family.  :-*    :-*    :-*
Title: Re: Unicorns For Addy
Post by: DGSquared on April 13, 2014, 10:05:01 PM
Why don't they give her a vitamin c drip? Poor little girl. Those staff infections scare me and for crying out loud why can't they figure out a way to avoid them?

If she doesn't get home, the fluffy bunny can visit her or leave footprints and an Easter basket. I know where to get an Easter Bunny costume. The family can even color eggs at the hospital or bring color eggs to decorate.


Creating is good medicine. So is music. Are they playing happy music for her? Subliminal healing.
Title: Re: Unicorns For Addy
Post by: DistantSun on April 13, 2014, 11:01:23 PM
If she doesn't get home, the fluffy bunny can visit her or leave footprints and an Easter basket. I know where to get an Easter Bunny costume. The family can even color eggs at the hospital or bring color eggs to decorate.


Creating is good medicine. So is music. Are they playing happy music for her? Subliminal healing.

So true! It was good to read that her appetite picked up a bit.


Rachel = Russell as in Romper Stomper? 😄 I'm sure I've got quite the lumpy head under all this hair, but I'd like to think is be prepared to part with it for a reason like this.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 12:30:59 AM
 :D :D

Russell cause she is bald I think mate.

The hospital does nice things for the kids stuck there in the holidays Deb

Hospitals don't get cleaned like they once did, germs have to gather where there are more germs.  ???
Title: Re: Unicorns For Addy
Post by: JewelAS53 on April 14, 2014, 01:14:36 AM
With her appetite improving her immune system should strengthen. Hopefully quickly.
Hugs and prayers to the family.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 03:42:17 AM
I hope so mate, she is a little battler that is for sure
Title: Re: Unicorns For Addy
Post by: heidi52 on April 14, 2014, 06:33:36 AM
Sorry to hear about the setbacks. Poor baby, we were all hoping that corner had been turned.  :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 07:46:50 AM
I think once she gathers her strength it will be Heidi  :-*
Title: Re: Unicorns For Addy
Post by: Gyppo on April 14, 2014, 10:34:39 AM
It's a long road, with many corners still ahead, but with a bit of luck, plus the flood of well-wishing she's getting, some of them may be more like gentle curves.

Go Addy ;-)
Title: Re: Unicorns For Addy
Post by: ma100 on April 14, 2014, 01:06:37 PM
Now she's eating it could be a good sign for her. I hope so. :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 06:13:51 PM
Yep, I think you are both right, Unicorn power!!  ;D
Title: Re: Unicorns For Addy
Post by: DistantSun on April 14, 2014, 09:09:58 PM
She got her bunny visit!
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 09:19:31 PM
 :D :D

She sure did, I stole it.  ;)

(http://i470.photobucket.com/albums/rr61/firefly254/Addybunny_zps171d38e4.jpg)
Title: Re: Unicorns For Addy
Post by: wanderer on April 14, 2014, 09:32:27 PM
Precious picture and she really looks happy.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 14, 2014, 11:11:09 PM
She sure does mate, such a nice little girl.
Title: Re: Unicorns For Addy
Post by: fire-fly on April 15, 2014, 02:47:42 AM
Good Easter news  :D

Quote
We're home. HOORAY!!! Still neutropenic, but we've finished antibiotics and she is lively enough to come home. She is was so excited that she gave kisses and cuddles to all the nurses on our way out.
Title: Re: Unicorns For Addy
Post by: Gyppo on April 15, 2014, 04:12:54 AM







                                              ;-)
Title: Re: Unicorns For Addy
Post by: ma100 on April 15, 2014, 04:30:22 AM
Bless her. Wonderful news.  ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on April 15, 2014, 06:48:26 AM
They want to try and spend some time on the beach next week. The kids will all love that.  ;D
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on April 15, 2014, 10:11:32 AM
They want to try and spend some time on the beach next week. The kids will all love that.  ;D

I'm sure the beach would be a wonderful treat for all of them, especially Addy after being shut up in the hospital for so long.

A lot of people, especially her parents, are doing great at helping Addy - you can tell by her smile.

Oh, and did you notice the decoration on the Bunny's vest, at least on first glance, gave Addy a curly right on the crown of her otherwise hairless head. It fit perfectly with her smile.  ;D
Title: Re: Unicorns For Addy
Post by: 510bhan on April 15, 2014, 10:24:21 AM
Happy Easter, Addy and the Clements family. ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on April 15, 2014, 05:56:31 PM
 :D :D

Gives the family a bit of bonding time again. Its so very hard for them with all the kids schooling and sport, to keep on top of family time as a whole.

Title: Re: Unicorns For Addy
Post by: DGSquared on April 16, 2014, 12:40:52 AM
Great news!
Title: Re: Unicorns For Addy
Post by: Suemcb on April 16, 2014, 01:02:50 AM
Fantastic news
Title: Re: Unicorns For Addy
Post by: fire-fly on June 05, 2014, 03:27:30 AM
Been a while since there had been news of Addy posted on FB but this was on today

Quote
A quick update for all you beautiful people out there... Addy is feeling pretty good, as you can see... maintenance is knocking her around a little bit but hopefully not for too long... need to try to keep these platelets which is proving difficult for miss atm...
More exciting news is, she should be able to return to preschool in the next month or so, only one day but she is very excited and definitely needs to get out of the house... mummy is of course a little worried, with exposure to illnesses etc but it will be very good for her...
.

She is very very excited.

Rach also emailed me to say they have started receiving money from the anthology sales so a super duper big thank you all there too guys  :-* :-*

Quote
Hey Linda,
Just wondering if you could post a massively huge thankyou from our family we have started receiving contributions from the book and they are greatly appreciated...
Once again a huge thankyou to all involved in the making of the book and for considering Addy worthy of the contribution. . Xoxo
The Clements'
Title: Re: Unicorns For Addy
Post by: ma100 on June 05, 2014, 03:36:20 AM
That's great news mate. Onwards and upwards. ;D
Title: Re: Unicorns For Addy
Post by: JewelAS53 on June 05, 2014, 04:15:23 AM
Saw that on facebook this morning - it's great news today.
Title: Re: Unicorns For Addy
Post by: Gyppo on June 05, 2014, 04:52:13 AM
That's promising news.  Time to bring out the dancing girls and stomp around a little ;-)

http://www.youtube.com/watch?v=8CCf7gvmDEU
Title: Re: Unicorns For Addy
Post by: heidi52 on June 05, 2014, 06:26:42 AM
Good to hear some good news about Miss Addy.  ;D ;D

Hope to see some pictures when she goes back to pre-school and sees her friends. That's exciting for a little tyke.

Title: Re: Unicorns For Addy
Post by: fire-fly on June 05, 2014, 06:45:07 AM
Lord help the pre school is all I can say  :D
Title: Re: Unicorns For Addy
Post by: 510bhan on June 05, 2014, 06:52:28 AM
Thanks for the update FF, still wishing her well. ;)
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on June 05, 2014, 10:27:17 AM
Wonderful news first think in my morning. Really starts the day off right.  ;D

Good wishes and prayers still coming her way.
Title: Re: Unicorns For Addy
Post by: DistantSun on June 05, 2014, 03:21:06 PM
I saw that update too :D  I bet she has a lot of pent up energy to spare! That's a good thing though, no wonder they're all excited about this.
Title: Re: Unicorns For Addy
Post by: DGSquared on June 07, 2014, 05:50:42 PM
Great news. Hope her classmates welcome her warmly.

Thanks for the update,  FF.

Good on you lot for the anthology donations. It's just something more to love about this group.

~Deb
Title: Re: Unicorns For Addy
Post by: Don on June 07, 2014, 07:08:09 PM
This is fabulous, FF. That tyke is one tough cookie.

You're right! God help the pre-school.  ;D ;D

We want pix. :)
Title: Re: Unicorns For Addy
Post by: Dawn on June 07, 2014, 08:34:52 PM
Fantastic news. Absolutely amazing little girl.
Title: Re: Unicorns For Addy
Post by: fire-fly on June 08, 2014, 03:53:36 AM
I hope they post pics and I will jump on them if they do mate.
Title: Re: Unicorns For Addy
Post by: 510bhan on June 08, 2014, 06:30:14 PM
And don't forget . . . you can also help here: http://www.lulu.com/shop/search.ep?keyWords=As+The+Kettle+Wolf-Whistled&categoryId=200002  ;)
Title: Re: Unicorns For Addy
Post by: fire-fly on July 24, 2014, 10:03:56 PM
Things have been quiet on the Addy updates because there is nothing happening!!  :D :D

This is amazing, considering how dire she was a year ago.

Below is a post put up yesterday, which was also Rachael's (Addy's mum) birthday

Quote
It is exactly 12 months today that we got an official diagnosis that our sweet little Addalyn had cancer... on this very day she had one of the most dangerous surgeries and came through it... over the next few days she teetered on the edge of life and death and with every hurdle beaten, came a new one... imagining that we would still be holding our beautiful girl now was almost impossible and a pain that no parent should feel... but we were lucky we have come through with shining colours....
Thankyou to each and every one of you for the varying support you have offered our family in one way or another..♡♡♡♡
To one of the toughest little girls I will ever know, Happy 1 year post diagnosis 'anniversary'..
and happy birthday to mummy... a day that will be changed forever. ...
Life.... come at us!

(http://i470.photobucket.com/albums/rr61/firefly254/Adie_zpsb03354e7.jpg)
Title: Re: Unicorns For Addy
Post by: Laura H on July 24, 2014, 10:40:43 PM
What a difference a year makes!

So sorry for what the family has been through, but how wonderful the place they are now.
Title: Re: Unicorns For Addy
Post by: fire-fly on July 25, 2014, 01:23:24 AM
 :D :D

Yup, they are pretty happy right now mate.
Title: Re: Unicorns For Addy
Post by: ma100 on July 25, 2014, 02:28:44 AM
It is indeed a wonderful place they are at now and they deserve some happiness. Onwards and upwards. :-*
Title: Re: Unicorns For Addy
Post by: JewelAS53 on July 25, 2014, 02:57:32 AM
I'm thrilled this family has peace now.
They've had a rough ride.
Title: Re: Unicorns For Addy
Post by: Gyppo on July 25, 2014, 03:00:54 AM
Only yesterday i was going to ask how she was getting on.  now i see for myself.

The little 'warrior maid' has a shine back in her eyes, which was noticeably missing in the last few pictures.

Best wishes to Addy and her entire family.

Gyppo
Title: Re: Unicorns For Addy
Post by: fire-fly on July 25, 2014, 03:12:03 AM
She does doesn't she Gyp, full of cheek.  :P

Yep shes going well girls, thanks.  :-*
Title: Re: Unicorns For Addy
Post by: 510bhan on July 25, 2014, 06:45:26 AM
Lovely to see that smile! ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on July 25, 2014, 07:46:15 AM
It really is a lovely sight 510  ;)
Title: Re: Unicorns For Addy
Post by: Dawn on July 25, 2014, 06:07:26 PM
Amazing to think it was a year ago. Told ya she was a fighter  ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on July 25, 2014, 07:24:00 PM
She sure is Dawn, a strong little fighter. So many times it was just too sad to think about. Now she has her Addy sparkle back.  :D
Title: Re: Unicorns For Addy
Post by: Don on July 25, 2014, 09:29:39 PM
Personally, I think the girl has a future in law enforcement. She could disarm somebody with that smile. :)

Great news, FF. Wishing everyone "Addy power."
Title: Re: Unicorns For Addy
Post by: fire-fly on July 25, 2014, 11:32:59 PM
 :D :D

Equally so with her steely stare mate.

Thanks Don  :-*
Title: Re: Unicorns For Addy
Post by: Tom 10 on July 26, 2014, 10:33:06 PM

FireFly - the picture you posted at #443 is perhaps the coolest picture I have ever seen. 8)
Title: Re: Unicorns For Addy
Post by: DistantSun on July 26, 2014, 10:45:50 PM
She's got a real "look at me now" expression! Best news ever!!

I watch our little 3yr old neighbour and cancer-survivor sometimes with all her sass and charm and know for sure they've been survival tools for her (and no doubt Addy too).
Title: Re: Unicorns For Addy
Post by: fire-fly on July 26, 2014, 11:08:52 PM
Pretty impressive isn't it Tom  :D

Sunny, for sure they would be. Kids have amazing resilience don't they.
Title: Re: Unicorns For Addy
Post by: fire-fly on October 01, 2014, 04:42:53 AM
Been a while since I have posted in here and that's because Addy is being a normal little girl going to pre-school and hanging out with family and friends.

She is still having chemo, just not the blasts she had before and she now has hair!!

They had family photos taken today and this was on their Facebook. I love it.  ;D

(http://i470.photobucket.com/albums/rr61/firefly254/AddyandCo_zpsaa021b59.jpg)
Title: Re: Unicorns For Addy
Post by: Gyppo on October 01, 2014, 04:50:32 AM
Magic.
Title: Re: Unicorns For Addy
Post by: Big T on October 01, 2014, 04:51:16 AM
Great News
Title: Re: Unicorns For Addy
Post by: fire-fly on October 01, 2014, 04:51:52 AM
 :D

I love it!!

They have stopped breeding now.  ::)
Title: Re: Unicorns For Addy
Post by: Dawn on October 01, 2014, 05:46:25 AM
What an amazing photo - love it. Look how well she looks. Told ya she was a fighter  ;D
Title: Re: Unicorns For Addy
Post by: fire-fly on October 01, 2014, 06:22:04 AM
 ;D :D

She sure is. They had facetime with My yesterday, such a gorgeous bunch
Title: Re: Unicorns For Addy
Post by: heidi52 on October 01, 2014, 06:55:21 AM
What a great start to my day. I'm so happy, for her, for you, for us here who were rooting for her.  ;D ;D ;D
Title: Re: Unicorns For Addy
Post by: Laura H on October 01, 2014, 07:14:16 AM
What a sweet family. So happy they're back to the good stuff.
Title: Re: Unicorns For Addy
Post by: Spell Chick on October 01, 2014, 07:32:11 AM
It's nice to see so many smiling faces. Beautiful start to a day. Thanks.
Title: Re: Unicorns For Addy
Post by: JewelAS53 on October 01, 2014, 07:43:28 AM
What a delightful photo!
Title: Re: Unicorns For Addy
Post by: DistantSun on October 01, 2014, 09:10:01 AM
Awesome photo!!  ;D ;D
Title: Re: Unicorns For Addy
Post by: Pale Writer on October 01, 2014, 09:49:08 AM
Beautiful family picture, lil glo. Thanks for sharing.
Title: Re: Unicorns For Addy
Post by: midnight candle on October 01, 2014, 09:56:06 AM
 8)

great pic FF
Title: Re: Unicorns For Addy
Post by: Soul Writes on October 01, 2014, 03:39:14 PM
Not seen this thread before, and it's wonderful to see things looking good. What a fantastically well-posed family photo; much better than all lined up in a long row.

 :)
Title: Re: Unicorns For Addy
Post by: 510bhan on October 01, 2014, 03:43:06 PM
Terrific! :D :D :D :D :D She looks great and it is so good to see her with all her siblings looking so happy too. ;)
Title: Re: Unicorns For Addy
Post by: ma100 on October 01, 2014, 04:24:43 PM
That is a beautiful photo. They all look so happy. :) She's a cheeky wee thing. ;D
Title: Re: Unicorns For Addy
Post by: Laura H on October 01, 2014, 04:56:19 PM
I wonder how much she'll remember of her ordeal?
Title: Re: Unicorns For Addy
Post by: fire-fly on October 01, 2014, 05:57:41 PM
They all wrap her in cotton wool when it counts, even the little girls.  :D

It is a top shot, a few others she has posted I will put up sometime today  ;)
Title: Re: Unicorns For Addy
Post by: Alice, a Country Gal on October 09, 2014, 03:37:44 PM
This picture would work well as a poster to show how a great family support system aids in the healing of such dreadful life trials.

Smiles beaming like rays of summer sunshine. Beautiful!
Title: Re: Unicorns For Addy
Post by: DGSquared on October 11, 2014, 10:07:48 AM
A lovely photograph of a beautiful family and what a troop of young-uns! Mom and Dad have their hands full.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 19, 2015, 07:32:16 PM
Well after all the smiles and laughter in October, here we are with this lot  :'(

I knew results were being waited for but I didn't want them to be this. I hope its not so.  ???

Quote
Yesterday at Addys routine checkup we were faced with some horrible news... some abnormalities have shown up in her bone marrow test from a few weeks ago... they think it may be a secondary cancer called acute myeloid leukemia.. she has to have another bone marrow aspiration to confirm but that is what it appears to be...
If this is what it is it means her journey is not over and her fight is harder... we will head to Sydney with 2 of our daughters, one will give the marrow and the other will receive. ..of course that is dependent on whether Bailie is match, she is Addys full blood sister... addys other siblings are only half (2 from mum and 2 from dad) so the chances of them matching are slimmer...
Keep addy in your thoughts and if you pray, do so... her next bm is in 3 weeks so the wait will be long and anxious but I will keep you as informed as I can...
Title: Re: Unicorns For Addy
Post by: Don on January 19, 2015, 10:00:55 PM
Not the news anyone wanted to hear, FF but the girl has faced long odds before.
I, for one, would not be inclined to bet against her. We'll keep her in our prayers.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 19, 2015, 10:32:19 PM
Gawd no way would I either Don. She has a lot of spunk that little one.  ;)
Title: Re: Unicorns For Addy
Post by: JewelAS53 on January 20, 2015, 01:25:18 AM
This just sucks.
Will keep the family in my prayers.
Title: Re: Unicorns For Addy
Post by: Dawn on January 20, 2015, 01:55:54 AM
She is such a fighter, Ff, is anyone can do this little Addy can. Thinking and praying for her.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 20, 2015, 02:06:29 AM
Yep, Addy Power!!
Title: Re: Unicorns For Addy
Post by: heidi52 on January 20, 2015, 09:39:16 AM
Poor Poppet! What horrible, horrible news, we all thought the worst was behind us.

You know we will all be rooting for her and trying to send her healing energy. If anyone can pull it off, she can, the brave little thing.

Our thoughts and prayers are with her and with you FF.  :'(

Title: Re: Unicorns For Addy
Post by: Laura H on January 20, 2015, 10:00:07 AM
This kid and her folks have been through the wringer. :( As Heidi said, we're all rooting for her  :-*
Title: Re: Unicorns For Addy
Post by: ma100 on January 20, 2015, 10:36:27 AM
This is just wrong and so unfair. Poor little mite. :'(
Title: Re: Unicorns For Addy
Post by: Gyppo on January 20, 2015, 02:38:04 PM
Not the news anyone wanted to hear, FF but the girl has faced long odds before.
I, for one, would not be inclined to bet against her. We'll keep her in our prayers.

I can't put it any better than Don did.  I wouldn't bet against her either.

Time to start bothering Odin again.

It worked once, let's make it work again.

Gyppo
Title: Re: Unicorns For Addy
Post by: fire-fly on January 20, 2015, 04:22:58 PM
She has no idea how many people around the world have her back, thanks guys.  :-* :-*
Title: Re: Unicorns For Addy
Post by: DistantSun on January 20, 2015, 04:54:54 PM
Maybe we could all send her some postcards again 😉
Title: Re: Unicorns For Addy
Post by: fire-fly on January 20, 2015, 04:55:37 PM
She really liked that I have to say.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 29, 2015, 01:28:50 AM
Bit more Addy news.

She was enrolled to start kindy this year because she was doing so well but the doctors have said no school till after her bone marrow transplant.

They don't want her to pick up any nasties between now and then. She will be very very disappointed that's for sure but a healthy Addy is the goal for 2015
Title: Re: Unicorns For Addy
Post by: JewelAS53 on January 29, 2015, 02:54:34 AM
She'll miss school - she did so enjoy going last year.
But it is best to give her the highest chance of success. Poor mite. The sacrifices she has already made.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 29, 2015, 05:35:02 AM
Yeah, right on all counts Jules
Title: Re: Unicorns For Addy
Post by: Dawn on January 29, 2015, 06:05:53 AM
I know Rachael felt it important to keep things normal but it's for the best. And they might have someone in the hospital that could help. Maybe lesson plans could help with boredom. Poor little love.
Title: Re: Unicorns For Addy
Post by: fire-fly on January 29, 2015, 05:28:01 PM
Yeah true mate. I think she has some mates rallying right in now
Title: Re: Unicorns For Addy
Post by: fire-fly on February 07, 2015, 11:33:17 PM

Hi all, this is straight from the Unicorns mouth:

Quote
So tomorrow is a big day for our family... Miss Addy goes in for another Bone marrow aspiration, please pray that the results aren't as serious as the drs are thinking they will be... but things aren't looking good for the baby of the family. ..
Miss Bailie goes in for her donor matching tests which she is being ever so brave about.. she isn't even scared and has taken the news in her stride... such as awesome big sister. I dont think she realizes as yet exactly how important she is to her sisters treatment. ..
We've had many many chats with the drs and this are going to get really hard for our family.. Addy is going to have to fight even harder than she has a any other point throughout her previous treatment. .. the odds are definitely against... will keep you all posted with news as it comes... for now, pray for our family and pray that bailie is the match we need xo
Title: Re: Unicorns For Addy
Post by: ma100 on February 08, 2015, 02:48:00 AM
The poor wee thing. It's just not fair she should have to go through all this. :'( :'( :'(
Title: Re: Unicorns For Addy
Post by: Dawn on February 08, 2015, 03:12:29 AM
I've everything crossable crossed and saying lots of prayers. I'm not massively religious but the big feller has come good for me at times.
Title: Re: Unicorns For Addy
Post by: Don on February 08, 2015, 09:32:40 AM
Unicorns have always been magical. We just need one more spell.
Title: Re: Unicorns For Addy
Post by: WordBird on February 08, 2015, 09:39:58 AM
Prayers and Unicorns for Addie and the Family. Like Don said above, Unicorns are magical. May they make everything work as good as it can possibly go.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 08, 2015, 04:57:29 PM
Thanks guys  :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on February 09, 2015, 06:12:08 AM
Well they took Ads for another test and Bailie had her blood test done today too. They wait a week to tell them exactly what the fight is this time

Quote
Well we're back from hospital. .. all went well today... Addys BMA went smoothly and miss Bailie got her blood test and didn't even flinch... super proud of all our girls.... and poor miss Ellie sat with us all day and didn't whinge once that she was bored. .. its been a long day for us all...
Now the big wait... we go back a week tomorrow for results. .. hopefully we'll know everything then, like what it is, when she goes how we're gonna do it and of course if Bailie is the match....

All the kids are lining up to have their bloods done so they can help Addy too. They are just so sweet and love her so much, so very very proud of them all.
Title: Re: Unicorns For Addy
Post by: Dawn on February 09, 2015, 06:41:09 AM
Such a long time to wait. Praying for them xx
Title: Re: Unicorns For Addy
Post by: Laura H on February 09, 2015, 07:05:32 AM
Thinking of them and of you today, Linda  :-*
Title: Re: Unicorns For Addy
Post by: Annmarie on February 10, 2015, 09:53:24 AM
My God, am I blind? I don't think I ever saw this thread.

Send Addy and her family good vibes from us. We've gone through fights like this, and will again. It's so hard. But kids are the most resilient creatures on the planet. With a loving family, they achieve so much. I hope the tests aren't as bad as doctors think, and Addy gets to school soon.

Go Addy!
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 01:26:02 AM
This is the latest, after Bailie being tested for bone marrow, not a lot of good but not as bad as they were thinking:

Quote
So results weren't great... but not as bad as could be... we're still waiting on more as well. ..
Basically Addalyn has now got what's called myloidysplasia, this is slowly turning into leukemia, but hasn't yet... she's had another chromosome change since the last BMA so its transforming rather quickly. .. thus means we will have to have a bone marrow transplant. ..
Her sister Bailie, was NOT a match... (I'm sure you will understand when I say that part of me us relieved, having one child in pain is hard enough)
Dad is only a 3/6 match. .. mum is a 5/6 match...great we thought. . Well not exactly. .. they really want a 6/6 match to reduce further complications in transplant at this stage... I am an option just not the option and of course with my own recent illnesses etc it may rule me out all together...
We're waiting to see if it's worth testing Addys 2 maternal half brothers but they're also turning to the registry for cord blood and bone marrow... (its times like these I wished I'd thought of donating these when I had babies)..
So we're looking at a minimum of 12 weeks in Sydney at this stage and our whole world is upside down again...

Rachael had an operation a couple of weeks ago and due to complications of her own, she is back in hospital again.

This family just cannot catch a break at the moment.
Title: Re: Unicorns For Addy
Post by: ma100 on February 17, 2015, 03:33:46 AM
How can so much be thrown at one family? It's so unfair. :-* :-* :-* I hope a match is found soon.
Title: Re: Unicorns For Addy
Post by: Dawn on February 17, 2015, 04:11:46 AM
What a double edged sword. My heart goes out to them all. Xxxx I cannot begin to imagine the pain and worry they are going through.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 05:09:57 AM
I know but at least she doesn't have leukemia yet
Title: Re: Unicorns For Addy
Post by: Dawn on February 17, 2015, 05:11:03 AM
Yeah they are being proactive which has to be a plus eh, buddy!
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 05:12:55 AM
Here is the FB link if anyone would like to join and give some support. It really does help knowing so many people look on to see how she is going

https://www.facebook.com/unicornsforaddyclements?fref=ts
Title: Re: Unicorns For Addy
Post by: Annmarie on February 17, 2015, 06:32:23 AM
Sorry to hear it'll be another long stay and treatment. Thanks for the update.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 05:26:51 PM
We have yet to tell Ellie she can't be a match so won't need to be tested
Title: Re: Unicorns For Addy
Post by: Laura H on February 17, 2015, 05:42:10 PM
Will they turn to a bone marrow registry now?
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 06:06:21 PM
Yeah mate. Did you read all the comments on FB? The girl she was talking to, Tenelle, is mine. She sorta tried to explain in there why El won't be tested but I think she will find out more next week. Rach didn't get to go as she is in hospital herself
Title: Re: Unicorns For Addy
Post by: Laura H on February 17, 2015, 06:24:52 PM
I just read the update, didn't see the replies.  :-[
Title: Re: Unicorns For Addy
Post by: Don on February 17, 2015, 08:36:41 PM
We need a little unicorn magic here. Nothing is impossible. Give Addy a hug for me.
Title: Re: Unicorns For Addy
Post by: fire-fly on February 17, 2015, 08:59:43 PM
Its great it hasn't reached leukemia stage that's for sure
Title: Re: Unicorns For Addy
Post by: fire-fly on February 25, 2015, 12:03:45 AM
From Unicorns:

Quote
Down day today. ..despite being told that our daughter is extremely rare in the occurrence of her new diagnosis and the main transplant dr has had only 1 other child like her, many many years ago..
They also dont know much about her diagnosis which therefore means they don't know if its going to work...
And to top it off she may not even leave the transplant room... EVER...
Things just seem to be getting worse and worse...
We meet the Transplant team on friday and then it will be even more hard truths to take in. ... I've said this whole time not to piss in my pocket, we want the truth, the odds straight up front...don't sugar coat it....but for once in this whole journey i am actually afraid to hear what they may tell me on Friday. ...
It just leaves you asking WHY?!

I said I hope Fridays results are better but the doctors have told her not to expect that.  ???
Title: Re: Unicorns For Addy
Post by: ma100 on February 25, 2015, 02:56:38 AM
OMG, that is terrible. I just don't know what to say, even if I did it wouldn't help the poor wee mite. :'( :'( :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on February 25, 2015, 02:58:47 AM
No mate they have taken away all their hope. Michael is beside himself as he is a bit of a bottler. Rach tends to talk things out.
Title: Re: Unicorns For Addy
Post by: Laura H on February 25, 2015, 07:20:29 AM
I don't know what to say. So awful, and how do you comfort them after that? There will never be an answer to why  :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on February 25, 2015, 07:36:14 AM
Words of encouragement come easy when hope has a glimmer  ???
Title: Re: Unicorns For Addy
Post by: Laura H on February 25, 2015, 08:43:43 AM
I'm hopeful for a good outcome, there's always a reason to hope. But I wouldn't know how to boost their spirits. They're beat down right now and scared to boot.

Title: Re: Unicorns For Addy
Post by: Annmarie on February 25, 2015, 09:15:30 AM
Terrible.

 :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2015, 06:56:51 PM
Rachael post since seeing the transplant team yesterday:

Quote
Sorry for the delayed response for yesterday's Transplant Team Meeting...
Over all the information we received is no worse than on Wednesday but its no better...
Basically a Marrow or Cord Blood transplant is our only option. ... if we don't do it we're looking at as little as 6mths with her...
There is a 20% chance that she may not make it through the process, which is quite in your face high but that is the worldwide %...
Unfortunately she has a 50% chance of relapse of the new leukemia and 40% chance of Tcell relapse, post transplant ... but we will deal with those if they happen...
She is on the urgent transplant list because there is a huge risk of her relapsing Tcell because she's unable to finish her chemo regime for that... either way she is fighting 2 cancers. .. the wait will be somewhere between 4-8 weeks with cord blood being the quickest alternative. ..
She will definitely be totally infertile. ... and after much discussion between Dad and I (mum) we have decided not to keep an ovary... the risk of that procedure for her is too high and the fact that her ovary more than likely still carries Tcell in it, we're definitely not going to give it back to her....
Information overload i know but there is so much more than this that i am still trying to dicipher ...
Thankyou all for sticking with us through our journey so far... and we will continue to need your support for months to come.. x

The one big bonus Addy has is her innocence and the fact fighting this animal is really all she has known.
Title: Re: Unicorns For Addy
Post by: Gyppo on February 27, 2015, 07:11:13 PM
Poor old Odin must feel as if he's on speed-dial right now.

Gyppo
Title: Re: Unicorns For Addy
Post by: Laura H on February 27, 2015, 08:32:16 PM
I hate when they give time frames and percentages. I really hate this whole situation  :'(
Title: Re: Unicorns For Addy
Post by: fire-fly on February 27, 2015, 08:39:29 PM
I feel the same.

Keep dialing Gyp  :-*
Title: Re: Unicorns For Addy
Post by: ma100 on February 28, 2015, 01:38:05 AM
That beautiful little girl is the strongest, and bravest person I know. She really deserves a break. :'( :'( :-*
Title: Re: Unicorns For Addy
Post by: fire-fly on February 28, 2015, 05:36:15 AM
Yep that she does mate. If you could see her hop and skip, she is a delight
Title: Re: Unicorns For Addy
Post by: fire-fly on March 05, 2015, 05:37:06 AM
Another Addy adventure:

Quote
Miss Addy had some skin biopsies done today for genetic testing. .. you wouldn't think little miss has 2 wounds and 4 stitches on that little bum... not with that smile anyway wink emoticon
She's only just started complaining now but i think its because its bedtime lol...
And she is super excited because its her big 5th birthday tomorrow. ... oh wow... the baby in the family is 5!!
naturally we're trying to make it as special as possible. ...
I will be sure to post some birthday pics xo

(http://i470.photobucket.com/albums/rr61/firefly254/Ads_zps3hilyltj.jpg)
Title: Re: Unicorns For Addy
Post by: Dawn on March 05, 2015, 11:55:44 AM
Oh gosh, look at that smile. She is such a brave warrior. Little tike is like Archie with bruised knees. Can't wait to see the birthday pictures.
Title: Re: Unicorns For Addy
Post by: Gyppo on March 05, 2015, 02:54:55 PM
Does her condition leave here more susceptible to bruising, or is she just one of those kids who doesn't give a damn and barges into things anyway?

Either way, that's a glorious smile.
Title: Re: Unicorns For Addy
Post by: Don on March 05, 2015, 04:09:55 PM
If you could bottle that smile, you could make a fortune.

It's the kind of smile that makes Unicorns work overtime. :)
Title: Re: Unicorns For Addy
Post by: fire-fly on March 06, 2015, 01:36:32 AM
 :D :D

It sure is Don. Its her birthday today and someone baked her a Frozen cake, she will be stoked, its amazing. Owlbaby will be green with envy  ;D

(http://i470.photobucket.com/albums/rr61/firefly254/Olaf_zpsyusinp9t.jpg)
Title: Re: Unicorns For Addy
Post by: Annmarie on March 06, 2015, 02:25:07 AM
So Frozen has little girls obsessed down there too, eh?

A beautiful cake! My girl who just turned five is going to see this and ask why she didn't get it last month on her birthday.

Addy is a cutie, and I hope she had a fantastic birthday. Not even hospital can spoil that.  :D
Title: Re: Unicorns For Addy
Post by: Skylan on March 06, 2015, 02:36:14 AM
.
Title: Re: Unicorns For Addy
Post by: fire-fly on March 06, 2015, 03:07:08 AM
A friend wanted to make it for her, never said it would be a Frozen one. Hes a baker  :P

Does her condition leave here more susceptible to bruising, or is she just one of those kids who doesn't give a damn and barges into things anyway?

Either way, that's a glorious smile.

Yep Gyp, missed this question earlier, its mostly from her illness the little angel but she is wild, she doesn't hold back when she plays  :D
Title: Re: Unicorns For Addy
Post by: fire-fly on March 06, 2015, 03:08:42 AM
.

 :D :D ::)
Title: Re: Unicorns For Addy
Post by: fire-fly on March 13, 2015, 06:09:01 AM
Some more knock down Addy news  :'(

Quote
Miss Addy had a blood transfusion today and now we're home smile emoticon look at those rosey cheeks... its been a long time since we've seen color in her cheeks...
Unfortunately we got some bad news yesterday, one of her gene tests looks like it has come back positive for an extremely rare genetic blood disorder called Fanconi Anemia. . They took some more blood to confirm this test so will have results hopefully early next week..
At this stage i can't really tell you much about it but it puts us in a whole new ball game and the level of difficulties she will face is now so much longer... i will pass on info as i find it out xxxxxoooooo
It is also possible that Bailie could have this, being Addys full blood sister, she will be tested. .. but her other siblings are safe...
Right now we'd love for the universe to give us a break, just as we get back up we're getting knocked down

A link I found that outlines Fanconi Anemia

http://www.nhlbi.nih.gov/health/health-topics/topics/fanconi
Title: Re: Unicorns For Addy
Post by: Laura H on March 13, 2015, 07:02:57 AM
Yet another hurdle for them  :-[
Title: Re: Unicorns For Addy
Post by: Dawn on March 13, 2015, 07:05:05 AM
 :'( :'(
Title: Some very sad news
Post by: Laura H on October 01, 2015, 06:56:13 AM
Friends, Linda/Firefly has asked me to share the very sad news of little Addalyn Clements passing.

Addy was a special little girl and I know many of you have followed the updates over the past couple of years, and if you're like me you came to feel that you know and love this family.

Her parent's posted the following update on facebook-


It is with an enormous amount of sadness that we have to inform all of you guys that Addy gained her wings and flew high this morning at 7:20am. She fought a hard battle but in the end she was the winner. She fell asleep yesterday morning and stayed sleeping comfortably and when she felt safe enough with both mum and I sleeping beside her she grew her wings and said her final goodbye. Thank you for all of your love, support, donations and well wishes. Without you guys, we couldn't have made all the memories to get us through this difficult time. Love Rachael and Michael.


Our Linda is understandably devastated. I know she appreciates the community support and well wishes since this all started, but she's taking some time to be with loved ones and grieve for now.

Take care of yourself, Linda. We're grieving along with you  :'(

Title: Re: Unicorns For Addy
Post by: Simple Things on October 01, 2015, 07:39:47 AM
Indeed, sad news for all involved. Those shared extra moments will be cherished.
Title: Re: Unicorns For Addy
Post by: bri h on October 01, 2015, 02:01:11 PM
Linda contacted me this morning on FB to share the sad news. Honest, I've spent the day misty-eyed. She was a fighter and fought to the end. I was honoured to have a few of my poems selected to be published in the MWC Anthology, with the proceeds going to Addy and her family. She's asleep now and at peace.

With love. Bri. xbx
Title: Re: Unicorns For Addy
Post by: heidi52 on October 01, 2015, 02:08:47 PM
 :'( :'( :'(

Poor tyke

Deepest condolences to Linda and her family. How very sad.
Title: Re: Unicorns For Addy
Post by: Suemcb on October 04, 2015, 08:09:23 PM
So sorry to hear that news. Thinking of her family as they go through this sad time.
Title: Re: Unicorns For Addy
Post by: Laura H on October 04, 2015, 08:58:16 PM
A tribute article about Addy's journey and some lovely photos-

http://www.maitlandmercury.com.au/story/3396700/addy-grew-her-wings-and-said-her-final-goodbye/?cs=171#slide=4